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  • Thanks for the reply. If you run across it again will you pass it along?

    I am sorry you have the issue of ALS anxiety. It must be awful to worry like that.

    I think about it sometimes but try not to obsess. It is different for me though I am gene positive FALS. 94 percent chance for me Your risk if nonFALS is 1 in 500 to 800 depending on who you listen to.

    Take care
    Best wishes
    Nikki
    Hello
    Re your last post can you give me the reference for 85 percent of cases presenting with those symptoms? I really am interested in where the statistic came from.
    And for the record I believe the people who answer most on DIHALS are far more sophisticated in their assessments. Certainly it is unfair to say they (we) would deny ALS possibility unless " profound weakness of the hands" or foot drop.
    Thanks if you can provide the link
    Best wishes
    Nikki
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