ValRunk

Happy Birthday!

Happy Birthday

Dana

Happy Birthday again.

Happy Birthday !!!!!!!!!

Hi Val, just wanted to say Happy Birthday.

Hi Val, I guess so that is why they suggested the pump for me. I have been on 75 for about 18 months. I occasionally miss my noon dose and i dont notice much difference to me in the afternoon so i guess that they are not doing a great deal for me. I havent missed 2 or more in a row which would be a good test to see how effective it is

Hi Val. For me the trail worked well and i am in the process of having one fitted. It just takes so long here to do any thing. i suspect mine will happen in early August as the main man is on leave, sigh.

I hope if you go ahead with it you have some good results. I certainly suprised the people here when i did my trial with it.
Are you mch Baclofen at the moment ? I am on 75 mg per day.

If you are on PLM there are a few there that have it fitted with good results. I think though one had some trouble with it as well so its not full proof.

cheers
Peter

Hi, Val, I hope you are having a good day? Is your appointment soon? I hope all goes real good for you....I am so tired . I just feel like I want to sleep for a week... Tomorrow I am taking a day off. Might stay in bed all day.......I don't know what to think about the forum the last little while ? I am taking a break from it for a while.... No one knows what happened except Jeff and the moderators ..I can't even guess.. You take care, hugs, Linda

Oh, I didn't know that...might be worth looking her up. She is so helpful and a very caring lady...hugs to you , Linda

Hi Val, I thought I would let you know that my clinic appointment is the end of July.....I think they are not doing clinic much in June because of vacations...let me know how yours goes? I also can't remember if you have met Linda Brennan yet from MDA ? She is a wonderful lady and I just love her... Take care, Linda

Hello Val,
Im just saying hello, and thanking you for a comment you left on my page recently. I'm only just beginning to talk to other people in this community that no one chooses to belong to!
Blessings,
Roderick.

Hi Val,

Yes... I do live in Colorado Springs. Did your husband go or work at the Academy by any chance? So is he "really" retired as well (not working), or just got his 20+ years in a now moving to the civilian world?
We got to see the Thunderbirds practicing for the graduation ceremony a few weeks ago... those guys are so cool. We missed out on seeing the actual graduation day festivities because we had a school field trip. But it's pretty common for folks to find an empty field/parking space east of the Academy and just watch the Thunderbirds during the ceremony.

Linda/Val -

Thanks for asking.

My appointment did not go that well. my wife and I were hoping for a miracle that never came. I am showing increased weakness in my left arm (my "good" arm) and legs. He wants me to start on baclofin and start at the MDA clinic in a few months. He said my original diagnosis of MND is correct...I asked MND or ALS? He basically stated they are one and the same, just differing severity. I have an atypical form of ALS, very slowly progressing form of ALS.

My wife and I are taking it all in and trying to determine what to tell the kids. It really hit hard yesterday when he explained MND=ALS.

Dan

Hi Val, I have been traveling and will get home Sunday night. I need to call and make an appointment..I will let u know soon...hope u are doing good or at least better? Take care, hugs, Linda

yes. I was diagnosed with monomelic MND; not ALS. Probably semantics as MND/ALS not much difference. Still holding out for a miracle.
Dan