ghii

I'm very glad your husband has peace. I believe that is the most important component in dealing with this...with all things, including death. It's good you had a rest, ghii.

ghii, I hope your husband is continuing to feel better, and also that you're able to get some rest.
Ann

Caroline, no, not at all. I am not easily offended. Yes, that was why I did not get into the Christian thread till Jeffp matter crops up and then I jumped in and thought I better jump out again. I should apologize for that remark - remnants from my past. And no, I do not know Rene Lowery.


ghii

hi ghii.
i want to appologise for my post if i offended you..........which i probably did.
this is why they say you should not talk religion or politics lol.
we all have our own beliefs and views on such matters.
hope theres no hard feelings and we can start a fresh.
i notice your in texas,my best friend on the forum was from seagoville.
sadly he died over a year ago.
do you know rene lowery from the alsa? i have spoke to her on the telephone when sorting things out for del.
take care. caroline

Just like you, I hid the real tears. I think if I let go in front of Terry, he would just crumble. He is suffering a quite bit from emotional lability. And, like you, I hope it is very fast for him. I don't want to see him suffer any more than he has. It kills me. He is just so unhappy right now. There are a few things I would like us to be able to do before he declines much farther. There a few friends I know that he would like to see again. Other than that, he has lived a good and productive life. He is not afraid of dying, he is just afraid of the death. So am I.

Hi Gertrude,

It sounds like our husbands are progressing at the same pace. Terry is just minutes away from giving up driving, too. That is going to be very hard on him. At 49, losing his independence is just killing him. The walking is getting harder and harder. We finally had a transport chair delivered from the ALS Association closet, so at least we always have it handy just in case. With two teenagers in the house, we still have laughter.

Welcome to the forum! I look forward to connecting with you as part of this family!
Peace,
Melody

Hi Gertrude. I hope I spelled your name correctly. I am so pleased to meet you and learn about your culture. I believe you are very brave, and yes, although your plate is certainly full you seem to see the balance in life and afterlife. We will have much to talk about. We speak so often with metaphors because they seem to soften reality, but somehow provide a greater depth of understanding. Yours are wonderful, inspiring and so meaningful to me. Stay strong yet tender and share with us often. I am so pleased to be her friend.--Jay

Hi Jay. We just got back from the blood specialist, my husband has myeloma which is in near remission. That is good news.

I kept thinking of my earlier post, the connecting line. When I wrote it, I was in a hurry, I knew it is there but did not connect it properly. It is - as I always tell my sister, life has enough sufferings for us to hold onto them because they are perceived as a "good" - which helps shorten purgatory in the next life - a big part of our Catholic upbringing. Hence also life as such is hard enough - without feeling guilty about seeking to find some happiness, little moments of it here and there. I never thought of it, -- giving/given permission to be happy.


gertrude

Gertrude, As soon as you have made 20 posts more options will open up for you on the forum such as private messaging. Did you see that I sent you a friend request? See up at the top where it say Welcome ghii [upper right above the blue bar] If you put your mouse on the highlighted areas it will show you how to accept a friend etc. Love your posts and I replied to your Fiscus one this morning. What country are you from if I may ask? hugs, Kay Marie

Gertrude, thank you for your wonderful post. I am the husband with ALS who wishes to protect his wife from falling into the hole. This morning you brought to me a light, rope and a ladder.-- Jay

How are you today? I so enjoy your posts! hugs to you

Welcome to the forum! I sent you a friend request! If you click on my posting name you can see me. My husband has Bulbar Onset ALS and we have a 13 year old son still at home. hugs from one CALS to another. Kay Marie