alador
Active member
- Joined
- May 27, 2011
- Messages
- 80
- Reason
- Lost a loved one
- Diagnosis
- 12/2011
- Country
- US
- State
- NC
- City
- Anytown
I have been reading on this forum for several months. My husband began having slurring of speech in February 2011 and this was followed by difficulty swallowing. After extensive testing by a local neurologist and a referral to Duke ALS Clinic with two visits there he has been given a diagnosis of Pseudo Bulbar Palsy. Does anyone know the difference between this and Progressive Bulbar Palsy?
He is losing weight and a PEG tube has been recommended. He also is taking Ritulek knowing that this is not a cure. He is not having the emotional outbursts sometimes associated with Pseudo Bulbar Palsy.
I have been most thankful for this site as I try to educate myself about this awful disease and how best to take care of him.
I feel we should not complain about this turn in our life as so many others are affected at such a young age, however it is not easy to watch someone you love go through this.
We celebrated our 60th anniversary in August in Kauai, HI with our family and were so glad we could make this trip.
Please excuse the length of this, but know in the coming days I will need your support.
He is losing weight and a PEG tube has been recommended. He also is taking Ritulek knowing that this is not a cure. He is not having the emotional outbursts sometimes associated with Pseudo Bulbar Palsy.
I have been most thankful for this site as I try to educate myself about this awful disease and how best to take care of him.
I feel we should not complain about this turn in our life as so many others are affected at such a young age, however it is not easy to watch someone you love go through this.
We celebrated our 60th anniversary in August in Kauai, HI with our family and were so glad we could make this trip.
Please excuse the length of this, but know in the coming days I will need your support.