NHAMM
Active member
- Joined
- Mar 15, 2010
- Messages
- 50
- Reason
- Loved one DX
- Diagnosis
- 02/2010
- Country
- US
- State
- TN
- City
- Jackson
My mom was diagnosed with PBP back in Feb 2010. She cannot hardly eat anything by mouth nor can she communicate by speech. She has had quite a bit of neck pain and face pain. Her arms and legs have mostly been okay except she has had some stiffness in her feet. However, today she had several spells that happened when she was standing up. She was at home by herself when these happened and it really scared her. She said she was walking and all of a sudden from the waist down she got where she could not move. She said it felt paralyzing. Luckily she did not fall down, and she said they lasted around five minutes or so. These spells did make her feel weak.
When things like this happen you just wonder if this is part of the disease or could there be something else going on. Has anyone out there ever heard of anything like this? Can you start having trouble with your legs and your arms are still ok?
Any feedback would be appreciated.
When things like this happen you just wonder if this is part of the disease or could there be something else going on. Has anyone out there ever heard of anything like this? Can you start having trouble with your legs and your arms are still ok?
Any feedback would be appreciated.