Sammantha
Senior member
- Joined
- Aug 11, 2007
- Messages
- 501
- Country
- Uni
- State
- NC
- City
- Newport
Went to my appointments.. The resident and doctor saw me. They were not concerned about my thymoma or cat scan print out, he wanted the actual CD so i have to mail it to him. He then checked my muscle strength and what not. He sat down and told me that my symptoms were atypical for Myasthenia Gravis, he then scheduled me an appointment with his physical therapist before my EMG the next day. The therapist was great! I stopped complaining or even talking about the stiffness i have in my joints and what not, she picked up right away that my ankles were really stiff. I asked if that is why they shake so bad when i put any pressure on them, she said that was clonus. The left ankle just flops to the side with any pressure, and she said that i will need a brace soon for that ankle, but right now they are too stiff. I swim for excersize and she gave me some techniques to stretch out my ankle and hip. The doctor asked me how long i had that shaking in my ankle after he did my EMG. The EMG hurt because they had to do my eye muscles! At the end he said that i did have weakness in my deltoid and wrist and that he does not know why i have the clonus. He said that he does not think i have MG but cant say 100% because the bloodwork had not come back yet. He then said he did not know why my breathing had decreased and that my thoracic spinal muscles were good. So he is going to review all my old tests with my new ones and come up with a plan of action. Dr. H was a very pleasant man and he did the EMG himself even walked me to the room, he made me feel like i was being taken care of almost.
So close yet so far away, from a diagnosis......................Sammantha
So close yet so far away, from a diagnosis......................Sammantha