Old 07-25-2005, 10:40 AM   #1 (permalink)
New Member
Jessie's Avatar
Join Date: 2004
Posts: 16
Jessie is an unknown quantity at this point
Default Hand Swelling

Good Morning,
Is swelling of the hands a common result of ALS? My husband, Vic is now troubled with his right hand swelling mostly at night.

Our local ALS Society has just provided him with a Track Ball system and that has made his use of the computer somewhat easier. He is soldiering on trying to make the best of a tough situation.

We are continually amazed and grateful for the wonderful support from the ALS Society here.

I read the forums every morning and gain insight and encouragement. Thanks to alll who write so eloquently. I'm afraid I don't have much to offer in those areas for now. Maybe in the future.

Have a peaceful and pleasant summer day wherever you are.

Jessie is offline  
Old 07-25-2005, 02:45 PM   #2 (permalink)
TBear's Avatar
Join Date: 2003
City: Uxpatch
State: ON
Country: CA
Posts: 433
TBear is an unknown quantity at this point

Hi Jessie:
I don't recall any symptoms as you've mentioned, but I recall the nurses making sure that there is sufficient movement of water to the point where we were measuring inputs and outputs... yuk! Keeping hydrated is pretty imprtant to all of us... especially in this heat. (something that I refuse to complain about... winter will be here all too soon) but retention wasn't an issue with us.
I hope that otherwise all is as good as it can be. I have a track ball on my computer in the aircraft... it is more stable than a mouse in the turbulence! Pipe up on anything that you need... we're here to help if we can.


TBear is offline  
Old 07-25-2005, 03:30 PM   #3 (permalink)
Extremely Helpful Member
Al's Avatar
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Posts: 8,030
Al is on a distinguished road

I've never heard of swelling of the hands but my feet do swell occasionally. Usually after sitting fo long periods of time.
Al is offline  
Old 07-25-2005, 05:16 PM   #4 (permalink)
New Member
trisha p's Avatar
Join Date: 2005
Posts: 49
trisha p

Hi Jessie,

During our Christmas trip to Disneyland, I recall my brother's hands swelling if he let his hands and arms hang when we were walking around alot. By the end of the day, his hands would be swollen - not sure what caused it. I always assumed that it was from not being able to raise them during the course of the day. His wife used to tuck them into the straps of a small knapsack when we were walking to give them a break from hanging all day. Not sure if it's the same thing but it doesn't seem to bother him anymore.

trisha p is offline  
Old 07-25-2005, 05:38 PM   #5 (permalink)
PALS Mike's Avatar
Join Date: 2004
Posts: 146
PALS Mike is an unknown quantity at this point

I had the same thing happen to me in Vegas in May 04.
Walkin' around all day with my arms at my side, by evening, my hands swelled up and I had to have friends hold my drinks

Hasn't been a problem since...
PALS Mike is offline  
Old 07-26-2005, 10:14 PM   #6 (permalink)
Carol Deboer's Avatar
Join Date: 2003
Posts: 345
Carol Deboer is an unknown quantity at this point

Hi Jessie,

Henry did not have too much problem with his hands swelling up. His feet and ankles were another problem though. As Al said, movement is the best recourse for that problem. Henry did have some slight swelling in his hands in the first couple of years, but nothing too significant. Keeping them both elevated is good for that problem though. Good luck to you both. Will talk soon.

Carol Deboer is offline  
Old 07-26-2005, 10:40 PM   #7 (permalink)
Theresa2004's Avatar
Join Date: 2004
Posts: 310

Interesting topic. I recently saw my PALS friend, and within the short time span ,I tried to visually assess the situation, and gently touch to determine the 'worm like' movement Al and some others have experienced. No snakes under the skin I could determine, but I was purposely looking at his hands for any signs of disability. What struck me was they looked puffy. The fingers did, but more so the top of the hand. I would have never equated that with ALS, not sure I can, beginning to think he doesn't have ALS at all. But that is another story. By the way, his hands were at rest when I saw him, but they had not been prior, could the swelling for those who have ALS and are experiencing it, be a result of this heat, drinking more fluids, or a by product of any medication they are taking?
Theresa2004 is offline  
Old 07-27-2005, 04:06 AM   #8 (permalink)
New Member
Jerry Story's Avatar
Join Date: 2005
Posts: 54
Jerry Story is an unknown quantity at this point
Default Re:

[quote:cef391d212="Al"]I've never heard of swelling of the hands but my feet do swell occasionally. Usually after sitting fo long periods of time.[/quote:cef391d212]

Sometimes I get a puffiness of the left foot. That's a sign that I need sleep. It invariably gets unpuffed when I get really lots of sleep.
Jerry Story is offline  
Old 07-30-2005, 03:37 AM   #9 (permalink)
Timshelper's Avatar
Join Date: 2003
Posts: 157

It was funny just after reading this post I went to visit Tim and he was telling me his newest symptom... feet swelling and they were. It reminded me of when I was pregnant with my children. He said after a good nights rest the swelling did go down. I told him to keep his legs elevated as much as he could through out the day and Home care said he might have to wear support stockings. I told him to get white they are more fashionable then the beige.
ALS About Loving Someone
Timshelper is offline  
Closed Thread

als, als?, ball, night, support, swelling

Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Similar Threads for: Hand Swelling
Thread Thread Starter Forum Replies Last Post
Symtoms only in left hand since 2 1/2 years - hand surgeon suspects MND Untertph Do I Have ALS? Is This ALS? 5 03-16-2015 07:51 AM
Hand swelling Music67 General Discussion About ALS/MND 6 06-22-2014 05:06 AM
Swelling In Feet. crazycrazyob Do I Have ALS? Is This ALS? 20 12-28-2012 09:15 AM
Swelling In Feet. crazycrazyob Do I Have ALS? Is This ALS? 0 12-15-2012 04:25 AM
Swelling Feet Bhappy People With ALS - "PALS" 14 01-25-2012 05:21 PM
Hand Swelling rmstudier General Discussion About ALS/MND 3 05-30-2011 06:55 PM
Is hand swelling normal? SixthKid General Discussion About ALS/MND 9 04-16-2011 08:38 AM
Swelling? SteveS People With ALS - "PALS" 8 01-27-2009 03:05 PM
Hand/Finger Swelling RICHPD General Discussion About ALS/MND 4 08-26-2008 11:57 AM
swelling? RR15 Do I Have ALS? Is This ALS? 2 08-22-2008 11:15 PM

Go to the top of the page

  ALSforums - Get help and support with ALS/MND