Lynda
Active member
- Joined
- Jun 4, 2015
- Messages
- 45
- Reason
- CALS
- Diagnosis
- 03/2015
- Country
- US
- State
- CT
- City
- Naugatuck
This is not a decision my husband has to make right now. He can still eat and drink, although some days are more laborious than others for him. I prepare softer foods and high calorie smoothies for him to make it easier and that's working for now. He's actually up 12 pounds in the last 2 months.
We have had our medical directives in place for some time, long before the diagnosis. One of the items we checked off as not wanting was feeding tubes. I did tell my husband that, given his diagnosis, he might want to revise that. He also might choose to keep it as is. I told him it's his decision and I'll respect whatever choice he makes.
It left me wondering if any of you (as either patients or caregivers) had made the decision to not allow for feeding tubes or bags of any kind. I'm just trying to wrap my head around the possibilities before we have to deal with it.
Thanks for sharing your experience with me! It's very much appreciated.
Lynda
We have had our medical directives in place for some time, long before the diagnosis. One of the items we checked off as not wanting was feeding tubes. I did tell my husband that, given his diagnosis, he might want to revise that. He also might choose to keep it as is. I told him it's his decision and I'll respect whatever choice he makes.
It left me wondering if any of you (as either patients or caregivers) had made the decision to not allow for feeding tubes or bags of any kind. I'm just trying to wrap my head around the possibilities before we have to deal with it.
Thanks for sharing your experience with me! It's very much appreciated.
Lynda