I'm with you guys! My gastro doesn't mind that I'm slowly starving, but freaks out when my blood pressure is off, even when I assure her that I'm constipated and it's just minor AD*, no big deal. People on "Very Low Calorie Diets" have to see their doctor twice a week, I can't even eat that much most days and my gastro cheerily sent me off with plans to see me in six months. I don't mind that from my neuro, as there's nothing he can do and PLS isn't a bad gig anyhow. I do mind it from the person who's supposed to make me capable of eating.
The time I blew up worst was at the area's high-fallutin' neuro-opthamologist. My neuro wanted him to figure out why I was losing color and constrast vision. Some of the staff were really nice and held me up through the tests, some had too much to do and that if I couldn't hold my head up to the thing, they couldn't help. The doctor didn't even care that he hadn't tested either of my visual deficits or many of the other tests he had ordered... he just shrugged it off and told me it was currently "under the radar". It's not under the radar if you turn the radar off! He didn't even take the time to make a practical suggestion or two about dealing with the low vision I have. It was a complete waste of three very painful hours.
Arggh.
AD = Autonomic Dysreflexia, A problem in spinal cord injury that affects the sensory neurons. My HSPish PLS has removed some of my sensation in my legs and butt. (HSP likes to do side damage late in the course of it.) AD happens when your body is trying to register discomfort/pain/trouble, but the pathway doesn't work. The report ends up circulating around your parasympathetic system, raises your blood pressure, makes your above-injury skin warm and red, below becomes pale and clammy. In serious cases it requires meds, but light cases like mine just take some quality toilet time. The biggest danger with it is being treated by medicos that don't understand AD or understand you get it, who over medicate your high BP, and when the discomfort passes, the meds dump your BP to nothing.