Hi,
I wanted to stay away from the board until I've got my final diagnosed. As I mentioned before in another post I went back to my GP with my echo results etc and he says every 'normal' thing has been eliminated and he is convinced there is something wrong with my nerves and that he now thinks it could be MND afterall.
After 23 months of widespread twitching this came as a shock to me. I have to go to the neuro next week for the tests. It's so hard to get, 2 years long they are saying I have BCFS, nothing to worry, see a therapist etc and know this...ofcourse now I get lines like " in medecin nothing is 100% and there are always exceptions, this is not our fault" blabla, I really feel very bad because I always tought something was really wrong.
my symptoms so far
- left shoulder and arm pain - with an the (near) left shoulder blade continuous fine twitching & buzzing and slight weakness in arm
- widespread twitching for 23 months
- At night (last couple of days) I wake up and everytime my pink and ring finger are completely numb, every time on both hands, I can get them back to normal when I shake them (- Is this an ALS symptom too?)
- Since last Saturday I've got a lumbago, just like that, is this maybe because of the muscles in my back that are getting weaker? So als related?
Thanks
I wanted to stay away from the board until I've got my final diagnosed. As I mentioned before in another post I went back to my GP with my echo results etc and he says every 'normal' thing has been eliminated and he is convinced there is something wrong with my nerves and that he now thinks it could be MND afterall.
After 23 months of widespread twitching this came as a shock to me. I have to go to the neuro next week for the tests. It's so hard to get, 2 years long they are saying I have BCFS, nothing to worry, see a therapist etc and know this...ofcourse now I get lines like " in medecin nothing is 100% and there are always exceptions, this is not our fault" blabla, I really feel very bad because I always tought something was really wrong.
my symptoms so far
- left shoulder and arm pain - with an the (near) left shoulder blade continuous fine twitching & buzzing and slight weakness in arm
- widespread twitching for 23 months
- At night (last couple of days) I wake up and everytime my pink and ring finger are completely numb, every time on both hands, I can get them back to normal when I shake them (- Is this an ALS symptom too?)
- Since last Saturday I've got a lumbago, just like that, is this maybe because of the muscles in my back that are getting weaker? So als related?
Thanks