ALSforums
Old 11-22-2008, 04:11 PM   #1 (permalink)
New Member
Join Date: 2008
City: san diego
State: CA
Country: US
Diagnosed: 00/0000
Posts: 36
taratune is on a distinguished road
Default What causes nerve surge spontaneous fecal urinary incontinence ?

My brother has a weird bulge feeling in between his shoulders. He has recently been feeling a surge of pain down his spine that shoots into his legs. He has progressive muscular atrophy and can no longer walk or stand. His shoulder muscles are weak but he still has good use of his hands. He can also eat and speak well. Today he felt the nerve surge down into his groin area and spontaneously became incontinent of bowel and bladder.

I have not read anything that tells me this is typical of ALS. My brother insists that he has a pinched nerve in his back. It is worse when he sits or lays on his back so he lays on his stomach or until recently stood (leaning up against something) only. I am thinking that he may have more than one neurological problem.

Has anyone else experienced this nerve surge spontaneous incontinence thing?
Do you have any idea what could be causing this?

Thanks for any help,

Tara

taratune is offline  
Old 11-22-2008, 04:18 PM   #2 (permalink)
Extremely Helpful Member
Al's Avatar
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Posts: 8,030
Al is on a distinguished road
Default

Hi Tara. Your brothers problem doesn't sound ALS related to me. While some patients do have incontinence problems they are not usually associated with a nerve surge as you describe it. I think he could be right about the pinched nerve. Might be a good idea to get it looked at.

AL.
Al is offline  
Old 11-23-2008, 02:54 AM   #3 (permalink)
New Member
Join Date: 2008
City: san diego
State: CA
Country: US
Diagnosed: 00/0000
Posts: 36
taratune is on a distinguished road
Default nerve surge incontinence, mitochondrial disorder

Thank you for giving me your feedback. My brother has been complaining about his pinched nerve and he has had several MRI's with and without contrast and several doctors have told him that nothing shows up but a slight bulge in the disc that is not enough to cause his symptoms. None of the doctors will do exploratory surgery to see what it is. The just say he has PMA. One doctor did take an extra look at his muscle biopsy and is working him up for a possible Mitochondrial disorder but that doesn't explain the surge incontinence either. Is there anything else that can cause this? My brother does have very noticeable fasiculations. His EMG was very abnormal. I guess it could be some kind of motor neuron disease and something else....but what? Are any of you familiar with Mitochondrial myopathy?
taratune is offline  
Old 11-23-2008, 12:15 PM   #4 (permalink)
Member
Join Date: 2007
City: Northern
State: NJ
Country: US
Diagnosed: 00/0000
Posts: 393
lovelily is on a distinguished road
Default

Hello...Go look up 'Cauda Equina Syndrome'. Best of luck to your brother!
lovelily is offline  
Closed Thread

Tags
atrophy, back, brother, pain, problem



Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search


Similar Threads for: What causes nerve surge spontaneous fecal urinary incontinence ?
Thread Thread Starter Forum Replies Last Post
Incontinence Barbie General Discussion About ALS/MND 14 09-22-2015 01:54 PM
Incontinence Mageejj Current Caregivers (CALS) 13 07-24-2013 06:40 PM
Fecal Transplant Jim Mulligan General Discussion About ALS/MND 7 03-13-2013 03:41 PM
Fecal Transplant Jim Mulligan General Discussion About PLS 6 03-12-2013 06:29 AM
NERVE FUNCTION- For those who don't understand how a nerve conducts Karin Bolette Sonne General Discussion About ALS/MND 2 01-13-2012 01:12 PM
Spontaneous remission Graham T Stories of Hope 32 02-05-2011 02:31 PM
Incontinence drvcolombo General Discussion About PLS 11 06-16-2010 05:17 PM
Incontinence Markbreton General Discussion About ALS/MND 13 09-22-2008 03:52 PM
Urinary Incontinence/Paranoid Delusions DaryllAnne Current Caregivers (CALS) 4 03-25-2007 08:46 PM
Surge in ALS Cases rcharlton General Discussion About ALS/MND 4 02-20-2006 12:49 PM

Go to the top of the page

    
   
   
   
   
  ALSforums - Get help and support with ALS/MND