Thinking I may have onset of bulbar als

[momto2baseballboys]

2 months ago was having dizziness and blurry vision and had mri that was clear, it still comes and goes. I have a tingling tongue now for a couple years and always seem to have extra flem in my throat but have no swallowing problems. I had cheek injectione 2 weeks ago and a couple days later I noticed saliva gathering in the corners of my mouth (the dr says n connection) I feel like I am stumbling my words a little could be the extra saliva, last night eating crackers and was biting my cheek a little and they were a little tough to swallow, sorry for long post I am scarred to death, maybe my anxiety getting the best of me, also eye twitching and occasional arm or stomach twitch

 

[lgelb]

The cheek injection could have contributed to your issue(s) -- what was it?

This isn't ALS, though. You might look to hydration for some of those symptoms, and follow up w/the doc who ordered the MRI if the blurry vision, in particular, does not abate.

 

[momto2baseballboys]

Thank you I just get nervous with the twitching and saliva and also feels it makes me talk weird and of course my mind goes crazy with the bulbar symptoms

 

[momto2baseballboys]

The injections were Valuma

 

[lgelb]

Voluma. It's a dermal filler, for other readers.

I wouldn't go for more injections of that until/unless your sx resolve.

These are symptoms that anxiety makes worse, so I'd try to live [accent on "live"; most people reading this are a lot closer to death than you are and they are still participating] your life pretending that they don't exist, and see what happens.

All the best.
--Laurie

 

[momto2baseballboys]

Ugh today I feel worse, lots of stomach twitching and just lots of weakness and still excess saliva, feeling scarred

 

[Atsugi]

I agree with Laurie. Nothing you wrote has anything to do with ALS, and everything to do with stress/anxiety.

I can't imagine what would bring you to think you should look into ALS. None of symptoms have anything to do with ALS.

 

[momto2baseballboys]

HI Mike, I guess when I started having excess saliva somewhat drooling and twitching it made me think that, when you look online it lists those as possible symptoms, I don't mean to be selfish I was just feeling scarred

 

[Atsugi]

HI Mike, I guess when I started having excess saliva somewhat drooling and twitching it made me think that, when you look online it lists those as possible symptoms, I don't mean to be selfish I was just feeling scarred

I understand. I hope you can see now, that you need not be scared of ALS. I wish we could help you, but we're not doctors and can't knowledgeably comment on conditions except ALS. Good luck sorting out whatever it is, and getting some relief.

 

[momto2baseballboys]

Still wondering if I should get tested just sitting last night I had twitching everywhere, the excess saliva and I forgot to mention hyperreflex that the Neuro told me about, I k ow everyone says this is not ALS but when I look at some posts and other sites it says these are symptoms, I'm so confused

 

[Atsugi]

Mom, you don't have to believe us. Go get checked if you want.

 

[momto2baseballboys]

I know Mike guess I just wanted reassurance because of new twitches, I'm sorry it's hard when you read abouthis them and others with ALS have, no offence Mike I really appreciate your support

 

[GregK]

Everyone twitches. It is far too common to be diagnostic of anything.
However, my twitches aren't 'occasional'; they're ever present.

Laurie and Mike have been around for a while. Trust their opinions.

It's time for you to put ALS in the rearview and move on.

 

[momto2baseballboys]

Appreciate that just never had before and this saliva thing driving me crazy feel like I'm drooling

 

[momto2baseballboys]

Well went to Doc today said I did have a crooked smile and was slight, he asked if it had always been that way and honestly I didn't even know but the excess saliva is on that side, he chalked it up to anxiety and said I most likely born like that