Ok.. I said I would not post there unless I have medical confirmation of my state. However, this is driving me crazy and completely took over me. I cannot do anything except for crying all the time.
I started feeling very weird feelings in my right leg since New Year. First of all, it felt like the skin was insensible, like you could touch it and it would felt like not my skin. But later on it felt very numb (like not my feet) and, of course, twitching started. Actually, I am not very sure if I could call that twitching because I can never see or feel with fingers anything under the skin, I just feel like tiny tingling almost in the same area every day. It doesn't help if I move my leg, it is there, this tingling and would not go away. Also, I don'r know if it is tingling ( I am not an English speaker), it's like something is doing something in my muscles, some buzzing. Maybe it's already fibrillations (I am not sure if I can feel that). Then also, sometimes it feels like someone would sqeeze my leg firmly and this feeling lasts (maybe these are cramps? but surely not the cramps I used to exprience at nights, regularly from my adolescence). I started to worry about losing my strength, so regularly I walk in the room on my toes and then on my heals. So far it seems that I have not lost any strenght, but sometimes my musculs are so sore eve though I do not do any of the exercises. For me it seems that I can see some atrophy in this leg. I am just going crazy. And I know very well that I have never felt like that before. ALS was not an unfamiliar subject to me, but while it sarted with different sensations (it seemed that my leg was very cold sometimes, I would describe this feeling as when you chew mynthons in your mouth), I was not worried. My husband had a possible ALS diagnosis 4 and a half years ago. He underwent a lot of examination, all dismissing other possible diagnosis, but his EMG was clear. So he was told life would show. He was 32 then (i am now 35 yrs. old). Since then I was all into ALS, read a lot of stuff. But I never experienced any of this weird feelings that I do now. I even didn't have twitches. My husband didn't get better, actually he got worse, but he functionates, one or the other ways, but he says he would not go to the doctors anymore because it's better not to know the terrible diagnosis. And there I come... with all the same stuff. I would really like to think we are both hypochnodriacs, but I just can't explain those symptoms and am very scared of the future. Even though I know that some neurological disorders do not have an explanation.
Not for you to think that I am crazy, of course, I went to the neurologist and told him about my worries about ALS. He even didn't look at my leg, he said he didn;t need it. He tested the reflexes and then I jumped on one leg and then the other, he said that maybe my right leg (the weird one) is heavier. So far he didn't have anything to tell me, but because I was crying all the time, he suggested me I should take antidepressants.
It's been more than a week after the visit and I wonder if I should schedule another appointment with a different neurologist. The fact is that we are living away from home, in a different country, and I have an issue that maybe doctors are not very professional here. Even though I have a super insurance and visit only private clinics. Another symptom which I started to feel after the visit to the neurologist is the shortage of breath. But it is not that I could not inhale or exhale. Again, it seems like someone is strangling me (my neck) all the time. I wonder if I have a limb onset, would it be so fast that I have breathing issues.
My husband tells me just live with it and see what future brings.
But I just can't. I have 3 little kids and everything. It is so scary.
I started feeling very weird feelings in my right leg since New Year. First of all, it felt like the skin was insensible, like you could touch it and it would felt like not my skin. But later on it felt very numb (like not my feet) and, of course, twitching started. Actually, I am not very sure if I could call that twitching because I can never see or feel with fingers anything under the skin, I just feel like tiny tingling almost in the same area every day. It doesn't help if I move my leg, it is there, this tingling and would not go away. Also, I don'r know if it is tingling ( I am not an English speaker), it's like something is doing something in my muscles, some buzzing. Maybe it's already fibrillations (I am not sure if I can feel that). Then also, sometimes it feels like someone would sqeeze my leg firmly and this feeling lasts (maybe these are cramps? but surely not the cramps I used to exprience at nights, regularly from my adolescence). I started to worry about losing my strength, so regularly I walk in the room on my toes and then on my heals. So far it seems that I have not lost any strenght, but sometimes my musculs are so sore eve though I do not do any of the exercises. For me it seems that I can see some atrophy in this leg. I am just going crazy. And I know very well that I have never felt like that before. ALS was not an unfamiliar subject to me, but while it sarted with different sensations (it seemed that my leg was very cold sometimes, I would describe this feeling as when you chew mynthons in your mouth), I was not worried. My husband had a possible ALS diagnosis 4 and a half years ago. He underwent a lot of examination, all dismissing other possible diagnosis, but his EMG was clear. So he was told life would show. He was 32 then (i am now 35 yrs. old). Since then I was all into ALS, read a lot of stuff. But I never experienced any of this weird feelings that I do now. I even didn't have twitches. My husband didn't get better, actually he got worse, but he functionates, one or the other ways, but he says he would not go to the doctors anymore because it's better not to know the terrible diagnosis. And there I come... with all the same stuff. I would really like to think we are both hypochnodriacs, but I just can't explain those symptoms and am very scared of the future. Even though I know that some neurological disorders do not have an explanation.
Not for you to think that I am crazy, of course, I went to the neurologist and told him about my worries about ALS. He even didn't look at my leg, he said he didn;t need it. He tested the reflexes and then I jumped on one leg and then the other, he said that maybe my right leg (the weird one) is heavier. So far he didn't have anything to tell me, but because I was crying all the time, he suggested me I should take antidepressants.
It's been more than a week after the visit and I wonder if I should schedule another appointment with a different neurologist. The fact is that we are living away from home, in a different country, and I have an issue that maybe doctors are not very professional here. Even though I have a super insurance and visit only private clinics. Another symptom which I started to feel after the visit to the neurologist is the shortage of breath. But it is not that I could not inhale or exhale. Again, it seems like someone is strangling me (my neck) all the time. I wonder if I have a limb onset, would it be so fast that I have breathing issues.
My husband tells me just live with it and see what future brings.
But I just can't. I have 3 little kids and everything. It is so scary.
