Status
Not open for further replies.

TheCry

New member
Joined
Jun 16, 2012
Messages
3
Reason
Learn about ALS
Country
UK
State
Glasgow
City
Glasgow
Hi I will try and keep this brief and I am begging for some reassurance as I'm panicking beyond belief. For maybe 2 years Iv suffered with chest pain which felt like my bones were cracking, now it's got to the stage where I can barely turn or move in certain directions as it hurts so much. The doctor checked for inflammation of cartilage but it was fine so she reckoned it's muscle damage but nothing to worry about (this was a few weeks ago).

She checked my arms and legs and asked if it sometimes feels like creepy crawlies under my skin I said yeah sometimes, but since she said that Iv been getting twitching everywhere, mainly on my calf muscles, but on my arms sometimes, my thumb is twitching like crazy. It also feels like my left leg at the bottom feels hot, like the feeling just before you get pins and needles.

I have had lots of blood tests, all normal. I have no weakness in any limbs but the twitching in my calves especially is constant, i don't even feel it most of the time ( I read online this is a bad sign). The doc says I have anxiety but I'm going to neurologist to make sure. Today a d yesterday my lower back is really sore I feel like its spreading or something. I have a young child im losing my mind :(

Please, tell me this isn't bad
 
TheCry, found your first post after all...

Not sure what to say about the chest pain, but your neuro doesn't seem worried, I'd go with that. Is it possible for the "hot" foot to be a form of Gout? I recall getting something like that before I got ALS... don't think there was a connection, but I do have "vascular spasms" in that same foot, and take a medicine to help prevent the veins from going into a spasm and cutting down blood flow.

Have you checked out Benign Fasciculation Syndrome (BFS)? Many peoplel have years of twitching, and its nothing to do with ALS.

Please trust your neuro, and though it sounds like you something going on, it doesn't sound anything like how my ALS started.

Good luck, and keep us posted.
 
TheCry,
I'm with Helen go with what the doc are saying. Sensory problems are not A L S related. Hoping they find what it is and can fix it. It's only A L S when all else is ruled out.
 
"this isn't bad"...not sure why you would suspect ALS. Allow your Doc's to do their job but do not worry about ALS.
 
None of this sounds like ALS. ALS does not start out with pain.
 
Hi and thanks for the replies.

I know i've jumped from 1 extreme another but basically (I know I shouldn't have) I looked up some of my problems on search engines and they showed things such as ALS.

Also, for the past 2 or 3 days i've been getting terrible back pain, like around the bottom of my back and near my spine a bit further up. The twitching is still continuing too.

I haven't seen the neurologist yet Helen, my doctor has referred me to one although it could be literally months before I get an appointment and by that time i think i'll be in an asylum!

I don't have any weakness, I don't slur my words and I don't have any problem swallowing which I think is a good sign, but I am most definitely in pain with my chest and now my back, and my body IS twitching, are there many other non-serious conditions that can cause these symptoms?
 
ALS is the last thing you should even be thinking of.... pain is not an early symptom of als, only after muscle loss in my case. Spasms can cause it, but again, NOT an early symptom.

I would recommend getting off this site, check out the site I mentioned in my earlier post to see if that sheds some light on your symptoms. And don't let doc tor goo gle send you here again! As Toto says, you get what you pay for, he's a quack!

Go to your GP for your back and chest pain, maybe a spine specialist. You may only have a pinched nerve somewhere, no need to be so anxious about getting a rare disease.

Good luck!
 
Thanks Helen.

I know I shouldn't read search engines. With regards to muscle twitching, I get it all over on and off but on both calf muscles and the bottom of me legs it is constant and the majority of the time I don't feel them but can see them, I did read online this was a bad sign, is that not true? Why are they constant in my calves but everywhere else just random twitches all over?

I'm sorry for going on, but as I haven't even received my neuro appointment all I'm doing is panicking, whether it's ALS or another serious problem, I'm absolutely shattered.
 
Call your doctor immediately! Any chest pain needs to be evaluated by a physician. Get off this site immediately and call you doctor now. I REPEAT now! Especially, with the pain being in your back as well. Kim
 
Status
Not open for further replies.
Back
Top