Deborah Ann
New member
- Joined
- Apr 13, 2011
- Messages
- 4
- Country
- US
- State
- wv
- City
- charleston
My husband started out by the tingling and numbness in his right hand. After 4 months give or take a couple of weeks he started dragging his feet. Then his knees started to bother him. He went to his brothers ( My husbands brother is a General Surgeon )friend a neurologist that preformed an EMG and other test from his office. The doctor told him he needed bloodwork to see if he had an vitamin defiencey and an MRI of the spinal neck area to rule out tumor, slipped disk etc. He ruled out all of these and the EMG of the 4 areas upper and lower extremities is leading the doctor to think it is ALS/MND but hoping it's not so the doctor ordered more blood work. I begged my husband to do the blood work and find out what is wrong because we have three small children ages 6, 8 and 10 and we need him. After a couple of weeks he finally did the blood work. Three weeks later the doctor got the results and said it was negative and he is leaning more towards ALS and has told us he has no more test to run he advises us to get a second opinion from a specialist and he will help us to get in. My husband then found out this same doctor mis diagnost a lady with MS so now my husband says he doesn't have anything and he's not going to any doctor, now 4 1/2 weeks later my husbands right ankle his muscle has collasped he fell down and I told him he needs to get another opinion. He tells me he will today, but we will see. I'm scared, I love my husband, we have been together for approx. 14 years, we have three children and I don't know what to think or do. My husband is dragging his feet even more slowly now and this all started approx. 81/2 months ago. The advise I'm getting from my 72 year old Uncle (his wife died 2 years and a few weeks after she was diganoisd with ALS) My Uncle says it does not sound like Als because it effected his wife in both sides, its effecting both my husbands knees but the muscle deteration is only in the right side. An older lady friend of mine (we just made our friendship earlier) said her husband had the same symptons my husband has, ( right side only )and she took him to Duke University for answers, they did a muscle biopsy and said he had MS and he survived 14 years the last three being his worse. I guess what I'm asking for is, IS there anyone else with the same symptons and it was ALS? IS there another wife struggling with her husbands hard headness on getting a second opinion? Am I being paraonoid with wanting that second opinion? I've cried for weeks in the beginning after my husband goes to work and the children are in school. I put my emotions on hold for the three weeks we were waiting on the blood test results. It's been 41/2 weeks since we were told that his doctor is leaning towards ALS and to get a second opinion, I'm now back to crying again and the scared feeling is back.