brentonjb
Active member
- Joined
- Jan 20, 2011
- Messages
- 49
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- FL
- City
- Orlando
Greetings everyone. I'm still going through the diagnostic process myself, but after an appointment with my Neuro earlier, I did some reading and came across a quote from here that somewhat confused me.
While I know it's only one quote from one person, are the highlighted symptoms above (hoarseness and scalloped tongue) commonly known/thought to point towards an Bulbar ALS diagnosis? My Neuro noticed fasiculations in my tongue and face (lips) today, but said they were very fine and the tongue almost resembled a tremor (he didn't seem very sure regarding the tongue).
Regardless I am currently experiencing both scalloped tongue and voice changes. While the hoarseness and sometimes slurring comes and goes, the edges of my tongue are definitely scalloped (look like rigid teeth marks). Other than that I have widespread fasiculations and occasional pain in some limbs (mainly my hands, feet and calves). However, to date, not experiencing any weakness, though I am occasionally stiff.
I really appreciate anyone's insight / knowledge on the subject in advance.
patricia1 said:Hi Its me havent been posting for awhile. Hope everyone is hanging in there. I think I can help since I started with bulbar symptoms. First of all If you can move your tongue quickly side to side you dont have a muscle weakness there, even if your tongue vibrates or quivers ,alot of people have that when they stick out their tongues However if you have horseness a feeling of a lump in your throat slurred speech difficulty with liquids and or solids shortness in your tongue scalloped edges on the tongue unable to move your tongue firml;y against you cheeks and try filling your cheeks up with air and poking the side of your cheeks and the air in your cheeks dont resist Then I can assure you its ALS becaause nothing else presents with all of that. Hope that clears bulbar onset Pat
While I know it's only one quote from one person, are the highlighted symptoms above (hoarseness and scalloped tongue) commonly known/thought to point towards an Bulbar ALS diagnosis? My Neuro noticed fasiculations in my tongue and face (lips) today, but said they were very fine and the tongue almost resembled a tremor (he didn't seem very sure regarding the tongue).
Regardless I am currently experiencing both scalloped tongue and voice changes. While the hoarseness and sometimes slurring comes and goes, the edges of my tongue are definitely scalloped (look like rigid teeth marks). Other than that I have widespread fasiculations and occasional pain in some limbs (mainly my hands, feet and calves). However, to date, not experiencing any weakness, though I am occasionally stiff.
I really appreciate anyone's insight / knowledge on the subject in advance.