dukesnider
Member
- Joined
- Nov 17, 2007
- Messages
- 14
- Diagnosis
- 07/2007
- Country
- US
- State
- new york
- City
- glenville
My wife has ALS. She has had it for 18 months. She has a very rapid progression. At this point, she is confined to a wheelchair to move around the house, she only gets out of bed to use the bathroom or shower ( which i have to help her with both) she can't speak anymore, she can't swallow neither. On thursday we are going to the G.I. doctors to schedule the placement of a feeding tube. I sure could use some encouragement about the use of the tube since I will be the one feeding her. For those of you that don't know me, please read my threads so you can understand where I am at then please, I AM ALL EARS !. My wife's progression scares me because I know her time is rapidly approaching and hope this feeding tube isn't too little too late. She is aware how far she has progressed in such a short time. She has started to say a prayer every night from her prayer cards and is constantly reminiscing about when she was a child. She has a DYNAVOX to speak for her. To take her meds, she forcefully shoves them down her throat with her finger. I can't wait to get the tube inserted but I am having some anxieties about the care and use. Help me please. This community has always been supporting and informative. I need you guys. Thanks. Dukesnider