jessielf
Active member
- Joined
- Dec 26, 2011
- Messages
- 66
- Reason
- Lost a loved one
- Diagnosis
- 08/2011
- Country
- US
- State
- WI
- City
- wis rapids
My mom just called and told me she is getting worse and that her neurologist wants her to get hospice. I don't know what to think or how to feel. At times the way mom talks I have already lost her. Something she also forgot to mention but I think I already knew is she has bulbar palsy. I am ok with what she she has and I do accept her but I think the "mom" in her is already gone. I can't even bring up anything going on in my life even if it includes my kids w/out her changing subject to back to her. In all honestly I feel I want to just distance myself from her. She doesn't have any joy to her anymore. Her neurologist also wants her to go the specialist asap because of her getting worse. I planned to go when she was suppose to go later, but now that she is getting worse I don't think I could take any more bad news especially if they decide to give her a new time frame. I know when the new baby comes she probably won't have any kind of emotional connection w/ him. It just sad that she doesn't try to be positive about anything and I know that she all the right not to, but I want to remember the happy mom not the mom she is turning out to be. Boy this thing robs you of everything!