Danijela
Senior member
- Joined
- Dec 3, 2008
- Messages
- 667
- Reason
- PALS
- Diagnosis
- 11/2008
- Country
- UK
- State
- UK
- City
- Bolton
In the light of CJ's and Don's experience with the hospice I start this thread with a heavy heart.
Laurence and I attended our second outpatient hospice appoinment this morning. The consultant suggested an admission in order to establish his PEG feeding regime (never managed to do it by the community based team), deal with some minor discomfort and allow time for a new package of care to be devised and put in place (Laurence is retiring with me remaining in work).
We were left alone in the room to make our decision. Both were in tears. One breathing management option offered to Laurence was morphine and he was clear about not wanting it. He stated that he needs his ventilator (Bipap) and not morphine at this stage.
He will be admitted on either Friday or Monday, depending on bed availability. He will have his own room, wifi access, free visiting hours and children are welcome. The irony, oh the irony is that the hospice is right next door to a lovely park we take Stan to.
Dani
Laurence and I attended our second outpatient hospice appoinment this morning. The consultant suggested an admission in order to establish his PEG feeding regime (never managed to do it by the community based team), deal with some minor discomfort and allow time for a new package of care to be devised and put in place (Laurence is retiring with me remaining in work).
We were left alone in the room to make our decision. Both were in tears. One breathing management option offered to Laurence was morphine and he was clear about not wanting it. He stated that he needs his ventilator (Bipap) and not morphine at this stage.
He will be admitted on either Friday or Monday, depending on bed availability. He will have his own room, wifi access, free visiting hours and children are welcome. The irony, oh the irony is that the hospice is right next door to a lovely park we take Stan to.
Dani