Jennifer1975
New member
- Joined
- Jul 1, 2010
- Messages
- 5
- Reason
- CALS
- Country
- US
- State
- Kansas
- City
- Shawnee
Hi there. My 59 year old mother has ALS. She has been diagnosed since about two years ago. She had symptoms long before then. She has gone downhill in the past few months. She has not been out of bed in several days. She used to get out of bed for at least an hour each day. She is on a bipap 24x7. Her short term memory isn't very good at all. She can still eat for the most part but needs help. I am not sure at what point to get a feeding tube? My brother and I are her primary caretakers. I live with my mom and my brother lives across the street. We are using Hospice since maybe two weeks ago. They have been helpful. I wish I knew how long she has. I don't know how long someone can live using a bipap 24x7? She does not want a ventilator which I think is the right choice.
I am glad I found this board. I have found it very helpful.
I am glad I found this board. I have found it very helpful.