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How do you do it????

Posted 01-11-2011 at 09:51 PM by Ellamay

How to go on ...

I get asked everyday ..... " how do you do it?' ... I marvel at that question because what I do is not a choice. It's the committment that I made years ago. In the beginning of this ALS journey with Tony I sat down with him and said ... " I don't think I can do this". I have been frank with Tony from day one..... This disease does not allow you to mince words or pretend. I had to face everything head on... reality sucks big time.....

I have used humor at the darkest of times...... Sick twisted humor that sometimes only " we" understood. Those that are going thru this terrible journey. I won't repeat most of my bad jokes just that whatever it took to make us laugh I did or said.

Some days I don't want to get out of bed ... and my cats jump on me and start licking my fingers reminding me ... that they will eat me if I don't get up and feed them. I read that somewhere... ... and that life does go on. Stuff still has to get done, the dishes won't wash themselves, the laundry is piling up, and the garbage does have to go out and if I don't start the fire I will freeze to death ....

There is no magic to what i do there is only determination, compassion, and love. And of course stubborness that I can " do " this .... Tony deserves this ....

It is not without the support, compassion and love from all my friends and family that allows me to gather the strength I need to continue on. I thank each and every one who has given me a kind word or a big hug when I needed it the most. You have no idea how much that means to me......... As we near the end of this journey I thank Tony for teaching me that I am stronger than I ever thought, that I do have and can learn patiece, that giving is more rewarding than getting, and that I can do anything...........
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« Jan 2011     Main
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  1. Old Comment
    KC2U2's Avatar
    You rock! My wife is a spectacular care giver but an even better wife. I know she is strong and will do this with me, but thanks for reminding me how difficult it is for her. From all the PALS to all the CALS thank you so much!
    Posted 01-15-2011 at 12:54 PM by KC2U2 KC2U2 is offline
  2. Old Comment


    Thank you for all this information, I am very happy to be here coursework first time!
    Posted 01-20-2011 at 02:35 AM by yonge6h0jj yonge6h0jj is offline
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