World Federation Neurology ALS

[indigosd]

Has anyone else seen this site?

ALSU - World Federation of Neurology Research Group on Motor Neuron Diseases/Amyotrophic Lateral Sclerosis

Very interesting!

 

[brooksea]

ALSUntangled (ALSUntangled) on Twitter

I new about the twitter thing, but not the website. Thanks! Very cool what they are doing.

 

[BarryG]

I haven't looked at it in detail but one of the most useful pages on the website is the one where ALS clinics are listed. It lists Canadian clinics by province and US clinics by state and clinics in other countries so if anyone wants or needs to know where is the closest one to them this could be a very useful resource

ALS Clinics by Country - World Federation of Neurology Research Group on Motor Neuron Diseases/Amyotrophic Lateral Sclerosis

 

[tdamess]

thanks i am on twitter just havent learned how to work it yet but i will

 

[peter57]

nice site only one thing though

My nearest ALS clinic is app 1350km away, bummer.

On a positive side, at least we have a couple.

cheers
Peter

 

[indigosd]

Soooo.....my question is this, why can't all of these people pool their knowledge and money and come up with a treatment? Oh, I remember now-money! In a perfect world they would cooperate and be more concerned about saving the lives of our Pals instead of making more money. Heavy sighs....

 

[JeffP]

you said it exactly how i feel indigosd .its like they just look at it as a rare disease and why waste the money that just shows how screwed up this and other countrys are .i have no faith whatsoever in are government and the pharacuetical companys just my opinion