- Joined
- Jul 25, 2015
- Messages
- 1,606
- Reason
- CALS
- Diagnosis
- 07/2015
- Country
- US
- State
- tx
- City
- Dallas
Thanks for getting back to me everyone. Steve has been forgetting things, mixing up things and has been verbally aggressive the past week or two. He is normally so calm and patient. Some days he seems quite happy and some days he is quite impatient. I know we have been under a great deal of stress due to the never ending or done incorrectly remodel. It has made him upset since he would normally be the one to do any work in our house but I believe there is more to this.
We are in some kind of study and have to do phone interviews. I was asked several questions yesterday about changes proceeding two years prior to diagnosis. What I quickly realized is that he has changed and is no longer the same person. He has no need to get out of the house and as stated at top of this email gets very easily frustrated and has had short term memory issues as well as mixing up things that were said to him.
I guess my question is for anyone that knows about FTD. Are these symptoms? I am so sad watching him lose his abilities such as walking and hand usage that I do not know how I can take watching this terrible disease ruin his mind. I feel like I am trapped in a nightmare that just gets worse each day and I need for him to understand that we need to have some time away from all of this. Life seems to be ALS 24 hours a day for me and there isn't a strong enough prescription to make it tolerable. I try talking to him about his disease, things we should do and my feelings but his attention span and understanding of my feelings is not happening.
I know there may be stickies on FTD but I would love to just see what you all think and if this is just another loss we will have to take.
Thank you all for being there for me as sometimes I feel so alone in my thoughts and it really helps to share here.
We are in some kind of study and have to do phone interviews. I was asked several questions yesterday about changes proceeding two years prior to diagnosis. What I quickly realized is that he has changed and is no longer the same person. He has no need to get out of the house and as stated at top of this email gets very easily frustrated and has had short term memory issues as well as mixing up things that were said to him.
I guess my question is for anyone that knows about FTD. Are these symptoms? I am so sad watching him lose his abilities such as walking and hand usage that I do not know how I can take watching this terrible disease ruin his mind. I feel like I am trapped in a nightmare that just gets worse each day and I need for him to understand that we need to have some time away from all of this. Life seems to be ALS 24 hours a day for me and there isn't a strong enough prescription to make it tolerable. I try talking to him about his disease, things we should do and my feelings but his attention span and understanding of my feelings is not happening.
I know there may be stickies on FTD but I would love to just see what you all think and if this is just another loss we will have to take.
Thank you all for being there for me as sometimes I feel so alone in my thoughts and it really helps to share here.