3Grandboys
Member
- Joined
- Oct 7, 2014
- Messages
- 22
- Reason
- CALS
- Diagnosis
- 10/2014
- Country
- US
- State
- AZ
- City
- Tucson
Hi all! It's been awhile since I've posted.
My husband was diagnosed with ALS-FTD in October 2014. He is definitely weaker in body and mind, week by week!
He presented bulbar ALS and personality changes FTD, before a thousand other symptoms kicked in. He just started using a walker when we go out, which was shocking to me that we are already at that point. His ALS doc says his illness is fairly rapid deterioration. I am just so sad and overwhelmed.
Advice please! now recommended is bipap machine at night as well as we are to consider feeding tube because his weight loss of 30 lb in a year. Just now sure how someone with FTD will do with these changes. Or me!
Please share your experience, which is ever so helpful!
Thank you all; i am so grateful when you write.
My husband was diagnosed with ALS-FTD in October 2014. He is definitely weaker in body and mind, week by week!
He presented bulbar ALS and personality changes FTD, before a thousand other symptoms kicked in. He just started using a walker when we go out, which was shocking to me that we are already at that point. His ALS doc says his illness is fairly rapid deterioration. I am just so sad and overwhelmed.
Advice please! now recommended is bipap machine at night as well as we are to consider feeding tube because his weight loss of 30 lb in a year. Just now sure how someone with FTD will do with these changes. Or me!
Please share your experience, which is ever so helpful!
Thank you all; i am so grateful when you write.