Ontario caregiver
Active member
- Joined
- Mar 4, 2005
- Messages
- 76
We were told their would be no pain with ALS, but my husband has alot of pain from 4 in the afternoon till he settles aroun midnight. He puts his feet up and then his back is in severe pain.
Has anyone went on liquid morphine as explained to us it will get into his system faster so he will get relief faster. His concern is giving in to ALS, he feels it will make him tired and doped up more, so if you are it how did you find it.
On the sadder side the ones that have seen the later stages of ALS, is pain part of it, I know he has a lot of anxiety so sleep is hard for him, he also uses a bi-pap but breathe though his mouth alot and you can hear a rattle of plem or excess fluids in his thoat, because of this he needs a drink of water though a straw quite often disrupting all my night sleep, does anyone have this problem, and how do you deal with it. I always wanted to set up a rabbit water bottle some how so he could reach his own water when needed, but so far I do'nt think this is possible as it would leek all over him, but this invention has created alot of laughter with anyone I have discussed this with.
Will watch for answers, Thank's in advance
Has anyone went on liquid morphine as explained to us it will get into his system faster so he will get relief faster. His concern is giving in to ALS, he feels it will make him tired and doped up more, so if you are it how did you find it.
On the sadder side the ones that have seen the later stages of ALS, is pain part of it, I know he has a lot of anxiety so sleep is hard for him, he also uses a bi-pap but breathe though his mouth alot and you can hear a rattle of plem or excess fluids in his thoat, because of this he needs a drink of water though a straw quite often disrupting all my night sleep, does anyone have this problem, and how do you deal with it. I always wanted to set up a rabbit water bottle some how so he could reach his own water when needed, but so far I do'nt think this is possible as it would leek all over him, but this invention has created alot of laughter with anyone I have discussed this with.
Will watch for answers, Thank's in advance