Late to the game here, but my husband is also a vet. The benefit set is quite good. You can also get a specially adapted housing grant (SAH) and the VA will do wheelchair adaptations to your house up to $62,000, although it takes over a year to find out if you are approved or not. We were denied at first for all grants, including vehicle, because my husband could still walk around our house. I made as many calls as I could, including one to the Senatorial Committee on Veteran's Affairs, and they reversed their decision. You have to use your HISA grant first (which I think is for $5000 or $6000 and you have to get three quotes from contractors). A bathroom remodel is perfect for HISA. Your Prosthetics Department will know about it. A lot of paperwork, and maybe some phone calls from your local elected officials, will speed the process if you apply for SAH. We have had to wait quite a while for some things, but getting equipment from the ALSA loaner closet while we wait has been a good solution. I just wish they had more answers as to why veterans are so much more likely to get ALS. My husband is 30 and has no family history of ALS.
Good luck and keep ahead of the paperwork, and follow up with your VA contacts regularly to make sure you stay in the loop on equipment and services. If going to the VA for primary care is difficult, you can have home-based primary care come to your house (or at least in Pittsburgh we were able to set it up). Our social worker at the VA has been proactive in looking for grants and services to help us. There is an adult daycare we could use at the VA near us and I have "respite" hours biweekly that are covered by a local agency. Aide and attendance is really good unless you have to pay someone for care around the clock-- but they say it is not intended for independent living, just to supplement in-home family care. In addition to A&A I believe our VA will pay for an in-home nurse for up to three hours per day to help with bathing, although we do not use that yet.
There is also an insurance that will cover your mortgage up to $200,000. Not sure if the house insured has to be on a VA backed mortgage.
I also want to add that my husband was just able to get a diaphragm pacemaker installed, but it was done through a local hospital as an out-of-VA procedure and the VA paid for it. I found that amazing.
Our VA just got an ALS clinic and it is so much better than seeing all of the doctors separately. People really care at the VA but it can be easy to get lost in paperwork so try to stay on top of things, you can do it. My heart goes out to you with your recent diagnosis. It was really hard for us at first but with time it has gotten easier dealing with the diagnosis. Emotional support is very important and the VA will have counseling available. I recommend trying it even if you don't think you need it, if you don't like it you can always just check it out once and go back if you feel like it might help in the future.
Wounded Warriors can also help and they have counseling available for your family too and their own benefits counselor. Good luck!