Welcome to the ALS/MND Support Group Forums.

If this is your first visit we would like to give you a warm welcome and thank you for taking the time to browse our ALS, MND and PLS disease forums. If you have any questions, would like to join, or have interest about these diseases we encourage you to take a minute and click here and register your account.

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ALS and MND Support Group
Our support group is for ALL persons that have been affected by amyotrophic lateral sclerosis and motor neuron disease. This includes people afflicted with motor neuron disease, their friends, families, and loved ones. ALSforums is a community where you can ask questions, discuss concerns, voice your thoughts and experiences.
Please use this forum for any general discussions about Lou Gehrig disease, and inquiries or questions you may have regarding ALS/MND.
9,071Threads 102,237
by KimT
Yesterday 08:43 PM Go to last post
Newly Diagnosed (4 Viewing)
Please use this forum for any discussions related to being newly diagnosed with ALS and MND. This may include questions about your diagnosis, or concerns with being newly diagnosed with ALS.
746Threads 10,515
This forum was created to give individuals with ALS an opportunity to meet and discuss topics of interest. Individuals recently diagnosed with ALS can feel free to ask other members questions they may have.
2,532Threads 38,211
by KimT
04-24-2019 07:54 PM Go to last post
Have symptoms? Not sure if you have ALS, or what ALS is? Would you like to ask a general question about ALS symptoms? Please post all related questions to this forum.
8,053Threads 83,936
A forum for military veterans and veteran affairs. Discuss topics related to veteran affairs, ALS, and for military veterans to discuss benefits.
123Threads 1,329
03-13-2019 05:54 PM Go to last post
Familial ALS - fALS (1 Viewing)
ALS that runs in the family is known as familial ALS (or fALS). ALS that doesn’t run in families is called sporadic ALS. Familial ALS is very rare with only about one in ten of all ALS cases being familial.
105Threads 701
by Nikki J
04-18-2019 11:26 AM Go to last post
Stories of Hope (1 Viewing)
Please place your stories of hope, and reasons to look forward to the future in this forum. Much of what we read about ALS is sad and depressing, this forum is not the place for those threads.
572Threads 11,664
04-23-2019 03:30 PM Go to last post
ALS Tips, Tricks, and Gadgets you have found useful for people affected by ALS/MND. Post items that you have invented, adapted, found or made usable for PALS.
757Threads 6,587
by rafiksq
04-21-2019 11:27 AM Go to last post
ALS Research News (1 Viewing)
Post and read about interesting ALS related research news. Keep everyone updated, post your updates about Lou Gehrig's disease and ALS research news.
705Threads 5,661
ALS Drug Trials (3 Viewing)
Modern medicine is making great leaps and bounds; if you have any information about recent drug trials, clinical trials, post the information here. Drug trials and clinical trials are conducted to allow safety and efficacy data to be collected for health interventions (e.g., drugs, devices, therapy protocols, etc).
259Threads 3,433
by lgelb
04-09-2019 02:49 AM Go to last post
Frontotemporal dementia (FTD) is a clinical syndrome caused by degeneration of the frontal lobe of the brain and may extend back to the temporal lobe.
113Threads 1,319
10-06-2018 07:10 PM Go to last post
A place for CALS to remember their beloved PALS. Please use this forum to inform us of a loved one's passing.
726Threads 16,427
04-23-2019 10:55 AM Go to last post
This forum is for ALS related equipment sales. Any items that are no longer needed may be of great use to others affected by ALS.
926Threads 2,719
by swalker
04-22-2019 01:25 PM Go to last post
♥ Forum Supporters Private Area
Discussions within this forum cannot be viewed by the general public nor indexed by search engines. Click here to upgrade your access.
This forum is a private area for forum supporters, moderators and long-time contributors. This forum is intended to be a safe place for more sensitive discussions that are not publicly displayed on the website or available for consumption by social media websites and search engines.
61Threads 898 Private
Primary Lateral Sclerosis Support Group
Our PLS forums are available to individuals affected by primary lateral sclerosis. The PLS support group is for PLS or disease related information, treatments, tips, caregiver and patient discussions.
Please use this support forum for questions, answers and discussions relating to Primary Lateral Sclerosis (PLS).
1,153Threads 14,139
by Emanol
01-19-2019 02:42 PM Go to last post
Support for Caregivers of ALS (CALS)
This forum, inspired by the member jellycat, is for caregivers of people with ALS, both past and present.
This forum is for people that are currently providing caregiver support. People that have provided support can give support to those that are currently providing support.
3,160Threads 53,487
Yesterday 09:35 PM Go to last post
This forum is for people that have provided care to someone with ALS that they have since lost to ALS.
299Threads 4,606
04-24-2019 08:20 PM Go to last post
PEG Feeding Tube
Percutaneous endoscopic gastrostomy (PEG), or feeding tube, is an essential element of care when ALS has progressed to the point where it interferes with a person’s ability to swallow food and fluids. A feeding tube can reduce the stress and exhaustion of trying to swallow when swallowing becomes too difficult.
PEG feeding tubes supplement eating, or if swallowing is causing choking, may be used to replace eating. Ask your general questions about PEG tubes in this forum.
242Threads 2,488
Care of a PEG Tube (1 Viewing)
Discuss PEG care such as flushing, connecting and disconnecting as well as other general care and maintenance instructions.
68Threads 722
by chally
02-02-2019 08:44 AM Go to last post
PEG Recipes (1 Viewing)
PEG feeding tube recipes can be shared and discussed in this forum.
17Threads 214
by rose
10-27-2016 09:12 AM Go to last post
Progressive Bulbar Palsy Support Group
Please use this support forum for conversations relating to progressive bulbar palsy. Progressive bulbar palsy is a form of ALS that primarily affects both upper and lower motor neurons, but primarily motor neurons involved with controlling muscles in the neck, face, tongue and throat. Individuals diagnosed with PBP most frequently have difficulties with speech and swallowing.
Please use this forum for discussions about progressive bulbar palsy, PBP diagnosis, care, or to have any questions related to bulbar palsy answered.
236Threads 2,187
by lgelb
01-18-2019 05:23 AM Go to last post
Progressive Muscular Atrophy Support Group
Please use this support forum for conversations relating to progressive muscular atrophy (PMA). Patients with PMA often survive longer than patients with ALS and in some cases symptoms can be restricted to the arms or legs for a long time before spreading elsewhere in the body.
Please use this forum for discussions about progressive muscular atrophy, diagnosis, care, questions and help related to PMA.
66Threads 589
by Serval
07-20-2017 07:45 PM Go to last post
Multifocal Motor Neuropathy Support Group
Multifocal motor neuropathy is a progressive muscle disorder characterized by muscle weakness in the hands and differences from one side of the body to the other; affecting men much more often than women. Symptoms also include muscle wasting, cramping, and involuntary contractions or twitching of the leg muscles. MMN is mistaken for amyotrophic laterial sclerosis (ALS, or Lou Gehrig's disease) but unlike ALS, it is treatable. Early accurate diagnosis provides patients the ability recover quickly.
Our MMN forums are available to individuals affected by multifocal motor neuropathy . The MMN support group is for MMN related information, treatments and tips.
64Threads 432
by Meeshee
02-12-2018 02:12 PM Go to last post
Off Topic
This forum is for off topic conversations, stories, and other unrelated ALS topics of interest.
Other (4 Viewing)
Stories, other diseases, off topic discussions and general off topic conversations.
827Threads 14,639
by blitzc
04-21-2019 04:04 PM Go to last post
Post your event information for all to see. Feel free to post your questions and thoughts about an ALS fundraising event.
336Threads 2,567
by Par220
04-01-2019 06:45 PM Go to last post
Rants & Raves (1 Viewing)
301Threads 6,158
447Threads 6,511
Yesterday 02:12 AM Go to last post
26Threads 4,756
by JimInVA
04-02-2019 06:54 PM Go to last post
114Threads 4,465
by blitzc
04-20-2019 01:58 PM Go to last post
Come For Tea (5 Viewing)
22Threads 17,882
by JennyC
05-19-2016 07:13 PM Go to last post
Birthdays (3 Viewing)
38Threads 1,249
34Threads 668
by KimT
10-07-2017 05:45 PM Go to last post
Website Feedback and New Members
Please use this section of the forum if you are a new user, we'd love to have the opportunity to say hello. Post a quick greeting in the "Welcome New Members" forum. If you have feeback about the website, the forums, or the content, please post it in the "Problems/Bugs" forum.
We are very pleased you have found our online support group. If you are new, please take a moment to register and then post a message saying Hi to the members of the site.
399Threads 4,957
by ReginaS
03-28-2019 10:29 PM Go to last post
If you encounter a problem with the forums please post it here and someone might be able to help. This forum is not monitored by any specific user.
234Threads 2,022
by Nikki J
04-24-2019 11:05 AM Go to last post
What's Going On?
Currently Active Users: 214 (6 members and 208 guests)
View Who's Online
Most users ever online was 322, Yesterday at 06:21 PM.
ALS/MND Support Group Forums Statistics
Threads: 34,967, Posts: 440,616, Members: 38,537
Please give a warm welcome to Lynn27, our newest member!
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"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."


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