Welcome to the ALS/MND Support Group Forums.

If this is your first visit we would like to give you a warm welcome and thank you for taking the time to browse our ALS/MND/PLS and Lou Gehrig disease forums. If you have any questions, would like to join, or have interest about these diseases we encourage you to get involved.

How do I contact members?
Before you are able to participate in the conversations you will need to register for a forum account. Accounts are completely free and signing up takes less than five minutes. You will need a registered email account, we apologize if this is an inconvenience be we have had problems in the past when our forum allowed annonymous posts.

What does this website do? provides a free service in the form of this Internet support group. Our community consists of individuals working together to exchange information, and to offer moral support. We encourage you to join our community to learn about motor neuron disease, or to share your experiences with motor neuron disease (ALS/MND and PLS).

To view messages select the forum you would like to visit from the links below. If you prefer to search for ALS/MND/Lou Gehrig Disease information you can click the 'Search' link above, or click here.

  Forum Last Post Threads Posts
ALS and MND Support Group
Our support group is for ALL persons that have been affected by amyotrophic lateral sclerosis and motor neuron disease. This includes people afflicted with motor neuron disease, their friends, families, and loved ones. ALSforums is a community where you can ask questions, discuss concerns, voice your thoughts and experiences.
Please use this forum for any general discussions about Lou Gehrig disease, and inquiries or questions you may have regarding ALS/MND.
by lgelb
Today 12:22 AM
7,523 84,856
Newly Diagnosed (16 Viewing)
Please use this forum for any discussions related to being newly diagnosed with ALS and MND. This may include questions about your diagnosis, or concerns with being newly diagnosed with ALS.
by KimT
Yesterday 08:38 PM
420 6,744
This forum was created to give individuals with ALS an opportunity to meet and discuss topics of interest. Individuals recently diagnosed with ALS can feel free to ask other members questions they may have.
by pjinca
Yesterday 05:47 PM
2,251 33,627
Have symptoms? Not sure if you have ALS, or what ALS is? Would you like to ask a general question about ALS symptoms? Please post all related questions to this forum.
by Nikki J
Yesterday 08:22 PM
5,576 62,411
A forum for military veterans and veteran affairs. Discuss topics related to veteran affairs, ALS, and for military veterans to discuss benefits.
by GregK
02-03-2016 02:31 PM
23 467
Familial ALS - fALS (1 Viewing)
ALS that runs in the family is known as familial ALS (or fALS). ALS that doesnít run in families is called sporadic ALS. Familial ALS is very rare with only about one in ten of all ALS cases being familial.
by lgelb
01-29-2016 09:03 PM
43 330
Stories of Hope (12 Viewing)
Please place your stories of hope, and reasons to look forward to the future in this forum. Much of what we read about ALS is sad and depressing, this forum is not the place for those threads.
by mich5
Yesterday 04:48 PM
424 8,739
ALS Tips, Tricks, and Gadgets you have found useful for people affected by ALS/MND. Post items that you have invented, adapted, found or made usable for PALS.
by lgelb
02-05-2016 08:21 PM
591 5,419
ALS Research News (4 Viewing)
Post and read about interesting ALS related research news. Keep everyone updated, post your updates about Lou Gehrig's disease and ALS research news.
by azwxman
02-05-2016 01:28 PM
587 4,910
ALS Drug Trials (2 Viewing)
Modern medicine is making great leaps and bounds; if you have any information about recent drug trials, clinical trials, post the information here. Drug trials and clinical trials are conducted to allow safety and efficacy data to be collected for health interventions (e.g., drugs, devices, therapy protocols, etc).
by Nikki J
02-01-2016 01:52 PM
174 2,468
ALS and FTD (3 Viewing)
Frontotemporal dementia (FTD) is a clinical syndrome caused by degeneration of the frontal lobe of the brain and may extend back to the temporal lobe.
by Godiva
Yesterday 02:19 PM
95 1,179
A place for CALS to remember their beloved PALS. Please use this forum to inform us of a loved one's passing.
by anderkling
Yesterday 11:55 PM
591 13,803
Event Announcements (4 Viewing)
Post your event information for all to see. Feel free to post your questions and thoughts about an ALS fundraising event.
by affected
12-18-2015 01:23 AM
325 2,462
This forum is for ALS related equipment sales. Any items that are no longer needed may be of great use to others affected by ALS.
by eva2016
01-29-2016 09:09 PM
745 2,220
Primary Lateral Sclerosis Support Group
Our PLS forums are available to individuals affected by primary lateral sclerosis. The PLS support group is for PLS or disease related information, treatments, tips, caregiver and patient discussions.
Please use this support forum for questions, answers and discussions relating to Primary Lateral Sclerosis (PLS).
by Clearwater AL
Yesterday 09:17 PM
1,067 13,319
Support for Caregivers of ALS (CALS)
This forum, inspired by the member jellycat, is for caregivers of people with ALS, both past and present.
This forum is for people that are currently providing caregiver support. People that have provided support can give support to those that are currently providing support.
by affected
Yesterday 03:27 PM
2,556 39,454
This forum is for people that have provided care to someone with ALS that they have since lost to ALS.
by ClaireRoss
02-01-2016 05:37 AM
173 2,756
PEG Feeding Tube
Percutaneous endoscopic gastrostomy (PEG), or feeding tube, is an essential element of care when ALS has progressed to the point where it interferes with a personís ability to swallow food and fluids. A feeding tube can reduce the stress and exhaustion of trying to swallow when swallowing becomes too difficult.
PEG feeding tubes supplement eating, or if swallowing is causing choking, may be used to replace eating. Ask your general questions about PEG tubes in this forum.
by lgelb
Today 12:30 AM
157 1,849
Care of a PEG Tube (2 Viewing)
Discuss PEG care such as flushing, connecting and disconnecting as well as other general care and maintenance instructions.
by rosec
11-25-2013 06:32 PM
62 679
PEG Recipes (1 Viewing)
PEG feeding tube recipes can be shared and discussed in this forum.
by texastracy
06-16-2015 10:05 PM
16 204
Progressive Bulbar Palsy Support Group
Please use this support forum for conversations relating to progressive bulbar palsy. Progressive bulbar palsy is a form of ALS that primarily affects both upper and lower motor neurons, but primarily motor neurons involved with controlling muscles in the neck, face, tongue and throat. Individuals diagnosed with PBP most frequently have difficulties with speech and swallowing.
Please use this forum for discussions about progressive bulbar palsy, PBP diagnosis, care, or to have any questions related to bulbar palsy answered.
by GregK
02-04-2016 02:32 PM
222 2,047
Progressive Muscular Atrophy Support Group
Please use this support forum for conversations relating to progressive muscular atrophy (PMA). Patients with PMA often survive longer than patients with ALS and in some cases symptoms can be restricted to the arms or legs for a long time before spreading elsewhere in the body.
Please use this forum for discussions about progressive muscular atrophy, diagnosis, care, questions and help related to PMA.
by Mike29
08-24-2015 04:43 PM
64 583
Multifocal Motor Neuropathy Support Group
Multifocal motor neuropathy is a progressive muscle disorder characterized by muscle weakness in the hands and differences from one side of the body to the other; affecting men much more often than women. Symptoms also include muscle wasting, cramping, and involuntary contractions or twitching of the leg muscles. MMN is mistaken for amyotrophic laterial sclerosis (ALS, or Lou Gehrig's disease) but unlike ALS, it is treatable. Early accurate diagnosis provides patients the ability recover quickly.
Our MMN forums are available to individuals affected by multifocal motor neuropathy . The MMN support group is for MMN related information, treatments and tips.
by Vincent
04-06-2015 05:27 PM
57 399
Off Topic
This forum is for off topic conversations, stories, and other unrelated ALS topics of interest.
Other (5 Viewing)
Stories, other diseases, off topic discussions and general off topic conversations.
by affected
02-03-2016 01:14 PM
718 13,578
Rants & Raves (2 Viewing)
by swalker
02-05-2016 02:37 PM
256 5,575
Come For Tea (7 Viewing)
by texastracy
06-16-2015 11:58 AM
21 17,881
Birthdays (6 Viewing)
by Atsugi
11-18-2015 11:05 PM
37 1,236
by MaxEidswick
04-21-2015 06:47 PM
30 655
Fibromyalgia Support Group
This forum is intended for Fibromyalgia support, Fibromyalgia tips, sufferers of chronic fatigue and chronic pain.
Please discuss general topics about Fibromyalgia, Chronic Fatigue, or Chronic Pain.
by olly
01-03-2013 04:28 PM
67 591
Chat about whether your symptoms sound like Fibromyalgia, or discover Fibromyalgia symptoms.
by notme
12-29-2012 01:24 PM
28 240
Fibromyalgia is accompanied by chronic pain as a part of the syndrome and is usually widespread and the pain can occur anywhere at any time.
by MommyRissa
11-20-2012 10:48 PM
20 152
by lotusbri
11-26-2012 04:04 AM
32 362
Lyme Disease Support Group
This forum is intended for Lyme disease support and tips.
About Lyme Disease (1 Viewing)
Please discuss general topics about Lyme disease.
by hjlindley
06-15-2015 10:34 AM
54 625
Information and discussions about Lyme diagnosis or being diagnosed with Lyme disease.
by Atsugi
01-25-2016 12:38 PM
29 389
Discuss your thoughts, help, support or advice for people that are diagnosed and living with Lyme disease.
by jennyfer
10-18-2015 11:04 PM
8 38
Chat about whether your symptoms sound like Lyme disease, Lyme like symptoms.
by musicluver2713
11-25-2015 09:23 PM
16 126
Website Feedback and New Members
Please use this section of the forum if you are a new user, we'd love to have the opportunity to say hello. Post a quick greeting in the "Welcome New Members" forum. If you have feeback about the website, the forums, or the content, please post it in the "Problems/Bugs" forum.
We are very pleased you have found our online support group. If you are new, please take a moment to register and then post a message saying Hi to the members of the site.
by Skinz83
01-31-2016 04:21 AM
356 4,632
If you encounter a problem with the forums please post it here and someone might be able to help. This forum is not monitored by any specific user.
by Atsugi
02-05-2016 02:10 PM
187 1,625
♥ Forum Supporters Private Area
This forum is for Forum Supporters and long time contributors of the website. All discussions in this forum are private and not accessible to the general public, including Google.
This forum is a private area for forum supporters, moderators and long-time contributors. This forum is intended to be a safe place for more sensitive discussions that are not publicly displayed on the website or available for consumption by social media websites and search engines.
Private 6 182

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