Your Rant and Raving page, unload your feelings

[tdamess]

you should have who you are happy with not what you have to settle for

 

[MtPockets]

About the hand splints. I have to wear carpal tunnel splints on both hands. The first set I bought from a local medical supply house, cost $110, the next set I found at Walmarts better quality for $19.99.
hugh markup.

 

[Judith]

Joel,
So sorry about the UNCLEAN caregiver:shock:. Maybe Christine could check with your Pastor and other folks at your church to see if any do caregiving or know of someone good who is available.

Judy

 

[joelc]

Thanks Judy, we have done that but come up empty so far. This seems to be universal problem. Good caregivers seem to be hard to find but the search will continue.
Christine has settled down a bit so she is starting to be more open to starting to search.

I hope some CALS are reading this because this disease is coped with differently by everyone. It is definitely not one sided. I know it is very hard for CALS to cope with what is happening to their PALS, but it is not easy having this happen to you and not being able to do anything about it either. As PALS we are at the mercy of our caregivers.

Keep the faith!

 

[brooksea]

Good luck on the new search for a caregiver! It would seem that basic sanitary guidelines should be observed by anyone caring for any kind of patient.

 

[Blubear]

Oh Joel, I will be seriously praying for a good caregiver to come in and help! You so do not deserve someone who is as gross as that! I know good people are hard to find, but EWEEEEE! Glad Christine is lightening up a bit. I was going to suggest she ask the caregiver to make her a sandwich and see how that goes! hahahaha.....Hang in there, you deserve better and God will come in and help, you will see!
Hugs, Kari

 

[tdamess]

Oh Joel, I will be seriously praying for a good caregiver to come in and help! You so do not deserve someone who is as gross as that! I know good people are hard to find, but EWEEEEE! Glad Christine is lightening up a bit. I was going to suggest she ask the caregiver to make her a sandwich and see how that goes! hahahaha.....Hang in there, you deserve better and God will come in and help, you will see!
Hugs, Kari

kari- your fresh lol .. but you had a good point have them make a sandwich see if they are comfortable with eating it .. hope i dont offend anyone by seeing it this way

 

[Judith]

Joel, I am praying for you and Christine about this matter.

Judy

 

[GlenBrittle]

We have a new caregiver that has been working almost full time for the last 3 weeks. We had to find someone else because our son has decided he no longer wants to help us. Anyway, he has a few bad habits, he is always bitting his finger nails and sucking on his fingers so they are always dripping wet with sallva. Then he picks his nose and cracks his knuckles. Then he plays with his feet and cracks his toes. When he comes to tend me I see his soaking wet fingers and signal him to leave me alone, I am fine. When I am not really fine.

I mentioned this to Christine and she went balistic and told me I am to fussy. I couldn't believe it!

So I need your help to know if I am really being to fussy or not? Would this bother you or not?

This would not bother me at all when I say "GET THE FRAK OUT" !
We have already put a PSW on the do not send list. Wanda and I are the only people allowed to have attitude in this house.

 

[Zaphoon]

I'd have to educate this nose-picking, finger-sucking knucklehead regarding proper hygiene practices. After giving him this education, I'd tell him goodbye.

My mamma taught me better!

 

[brooksea]

My husband had the opportunity today to tear a new one in the PWC rep. Of course, I had to interpret most of it. And, he absolutely did not hold back.

The PWC stopped dead in it's tracks on July 1st. I got a call back from one of the reps and he walked me through a few things and decided a new joystick was needed. It was to be overnighted to their location. (I factored in the Holiday weekend) After 4 phone calls, with no response, I called the manufacturer on 7/16. The distributor had received the parts on 07/08! That did it! I called the owner and lo and behold they came out today. Turns out it was simply a cable that had become dislodged from the module in the back of the chair, probably due to the tilt feature. It likely got caught on the frame and came loose. I could've fixed that myself! I own a phillips head! I mean, why waste time waiting on parts you may not need? Wouldn't it have been more logical to send someone out to ACTUALLY LOOK at the chair?

Well anyway, he replaced the joystick just in case. The chair is working and I will never call the other rep that was so unresponsive again about a problem. The guy that came out is the owner's son and he informed me that he works on the chairs when there are problems. How hard can it be? The other rep could have directed me to him to begin with! He has a large territory to cover, but he had no knowledge of our problem, or could've talked me through it over the phone.

Further ranting:

I have been absolutely stressed to the max, as my husband has become more and more irritated that he is loosing the ability to control what he once could. Relying on me to take care of so much that he used to do, is pi$$ing him off to no end! I had to tell him this afternoon that I am not a 200lb man, after he asked why nobody can do anything around here! He wanted me to lift an aircompressor into the vehicle. You know how heavy those things are? I got the two teenagers that cut our grass to lift into the vehicle for him. I think that if he had his speech, he would be in much better spirits, as talking has been his livelihood. Then he could at least precisely explain to me what he wants me to do to fix things around the house. Sigh... Oh, yes...he sold his precious lawn mower.

Sorry for the long post. Just really down right now.

 

[joelc]

Oh CJ, boy can we relate! We have nothing but sympathy as we know first hand exactly what you are going through.

Our thoughts and prayers go out to you!

 

[luvnmm]

Joel - you are amazing, I don't know how you do it.

Yes, that man is disgusting, gross, unhealthy, uncouth, are there any other words I could use here? Get rid of him quick!

You and Christine are in my thoughts and prayers.

 

[tdamess]

My husband had the opportunity today to tear a new one in the PWC rep. Of course, I had to interpret most of it. And, he absolutely did not hold back.

The PWC stopped dead in it's tracks on July 1st. I got a call back from one of the reps and he walked me through a few things and decided a new joystick was needed. It was to be overnighted to their location. (I factored in the Holiday weekend) After 4 phone calls, with no response, I called the manufacturer on 7/16. The distributor had received the parts on 07/08! That did it! I called the owner and lo and behold they came out today. Turns out it was simply a cable that had become dislodged from the module in the back of the chair, probably due to the tilt feature. It likely got caught on the frame and came loose. I could've fixed that myself! I own a phillips head! I mean, why waste time waiting on parts you may not need? Wouldn't it have been more logical to send someone out to ACTUALLY LOOK at the chair?

Well anyway, he replaced the joystick just in case. The chair is working and I will never call the other rep that was so unresponsive again about a problem. The guy that came out is the owner's son and he informed me that he works on the chairs when there are problems. How hard can it be? The other rep could have directed me to him to begin with! He has a large territory to cover, but he had no knowledge of our problem, or could've talked me through it over the phone.

Further ranting:

I have been absolutely stressed to the max, as my husband has become more and more irritated that he is loosing the ability to control what he once could. Relying on me to take care of so much that he used to do, is pi$$ing him off to no end! I had to tell him this afternoon that I am not a 200lb man, after he asked why nobody can do anything around here! He wanted me to lift an aircompressor into the vehicle. You know how heavy those things are? I got the two teenagers that cut our grass to lift into the vehicle for him. I think that if he had his speech, he would be in much better spirits, as talking has been his livelihood. Then he could at least precisely explain to me what he wants me to do to fix things around the house. Sigh... Oh, yes...he sold his precious lawn mower.

Sorry for the long post. Just really down right now.

so sorry but sometimes your getting angry and frustrated is good for us kinda of rejuvenates our adrenaline ... ok joe who is cj

 

[brooksea]

LOL! CJ is me! You can call me Ceej!