Your Rant and Raving page, unload your feelings

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Marjorie, I've seen somewhat the the same at the clinic we visit. Not as blatant as you describe, but nonetheless, just as distressing.

And what can we do? Perhaps smile at them and give them (all) eye contact?
 
So, on 4/16/10, Emory OT ordered resting hand splints for my husband. He finally got an appointment to be measured on 06/09/10. I finally called the company on the first of this month to see what the status was on the treasured splints. Their response: "Oh, yes, we have them!" Gee, was anyone gonna let us know? He gets an appointment for 07/08/10 to pick them up. Now, the OT at that company had told him they could be mailed to him, no problem, as he realized it was difficult for him to get around. We show up for the appointment at 11 AM and the oh-so nice (NOT) receptionist told us he was to be there at 3:30 PM and we had to come back then. (Yes, the appointment was screwed up!) I told her we had traveled a long way and could not come back. She said, "You can either sit down and wait and we can TRY and fit him in or you can come back at 3:30." I told her we wouldn't be able to come back at 3:30, as my husband is already exhausted and is not able to get around like others, as he has Lou Gehrig's. Well, I see that nobody gives a rat's a$$ about what your condition is, just fork over the money through Medicare. PERIOD! She again repeated herself! I told her the OT said the splints could be mailed to him and she said we would never do that. I called the OT later in the day and he said he had "mis-spoke" and my husband would HAVE to come to his office due to Medicare guidelines. BULL HOCKEY! I called the Medicare Advantage plan my husband has and they said it is up to the discretion of the company as to whether they mail, deliver or have you pick up your equipment. So, I can only conclude that the OT had second thoughts and wanted to charge Medicare for another appointment. He will be getting a piece of my mind tomorrow, as when I called today their office was closed early. We have other resources and don't need a d@m^ prescription for it! He can either mail them or totally lose the money he would've gleamed off Medicare!

So there!
 
Go, Girl, Go! Could I borrow you, please? Sending you a hug or a high five or both...
 
I think I could use some of your spunk! Good for you.
 
I could definitely use your services! My wife is a way to timid. I hope you have success. Good for you!
 
Well, I'm not Superwoman, but when I get pushed just a little too far...I snap! Not really a good thing, as I don't negotiate well in that state of mind! LOL But, hey, it sometimes works! Verbally, I am really blunt when PO'd. You would prefer me in writing! :twisted:

I just hate it when people try to take advantage and don't CARE what your situation is. It's taken me a while to get my old spunk back. Believe me, I was hell on wheels when I was younger (that's why my husband married me!). I've decided that I have to be that way now or we will be walked on like a door mat and Medicare will pay for needless DME and who knows what else and we will get the ridiculous copay bills afterwards. Sickening!


There should be a clearing house for pALS. You know, an information HOTLINE that you could call to sort through things like this. OH - we have this forum! Thank goodness!:)
 
The 2 thing you need to be a good CALS is to be organized, and be firm. I was neither of these things when we started this journey, that was what Les did, and he was so good at it. I have a great teacher! HUGS Lori
 
it the squeaky wheel that gets greased
 
We have a new caregiver that has been working almost full time for the last 3 weeks. We had to find someone else because our son has decided he no longer wants to help us. Anyway, he has a few bad habits, he is always bitting his finger nails and sucking on his fingers so they are always dripping wet with sallva. Then he picks his nose and cracks his knuckles. Then he plays with his feet and cracks his toes. When he comes to tend me I see his soaking wet fingers and signal him to leave me alone, I am fine. When I am not really fine.

I mentioned this to Christine and she went balistic and told me I am to fussy. I couldn't believe it!

So I need your help to know if I am really being to fussy or not? Would this bother you or not?
 
Bother me? Joel I am with you, the guy sounds like a pig! Sorry but anyone over 8 years old who does those things is a pig. Not only unhygienic (and none of us can handle being exposed to someone else's germs) but GROSS too!

I don't know about you but catching a cold would do me in, I know it and the thought of someone like that helping me scares the hell out of me.
 
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I'm a bit fussy too Joel and I'd find that disgusting as well.

AL.
 
Your joking, right?

Sadly, I know you aren't joking, as I don't think you could make that stuff up!

PLEASE FIRE HIS A$$! DISGUSTING! What kind of caregiver is this nut? I mean a REAL nut! Is he doing this on purpose? He sounds sick...

Perhaps your wife has not witnessed this?
 
Oh, Joel, not ok at all. Do fire him... and hope he doesn't get a job at McDonalds. Gag, Yuck.
 
I'm the CALS, and I think it's GROSS- A grown man sucking his fingers to the point that they are wet when he comes to provide you any assistance! YUCK!

Having said that...I imagine the idea of having to find ANOTHER caregiver is probably overwhelming to your wife and scares the begeebees out of her.

Peace to you both!
 
Thank you everyone! You have no idea how much I appreciate your thoughts on this.

After the tongue lashing I got about being a total a_ _ hole I was starting to question my own sanity. That caught me totally off guard.

You are correct in saying she does not want to go through the task of looking for another caregiver. She is a very strong woman in so many ways but this is not one of them.

Just another little bump in the road. We will overcome this too.
 
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