Young ALSers

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bala80

Member
Joined
Oct 12, 2007
Messages
26
Reason
Learn about ALS
Country
AUS
State
Vic
City
Melbourne
Hi guys,
Just wondering if there are any young ALSers (20's) using the forum. I know there are people in their 20's here that think they may have ALS because they twitch, but are there any actual diagnosed young people... Just want to know whether I'm all alone in this. Thanks...
 

mamaoftwo

Distinguished member
Joined
Aug 16, 2007
Messages
224
Reason
Other
Country
US
State
NY
City
larchmont
Omar is only 28 I believe. And there are others. You are not alone.
 

tag0620

Distinguished member
Joined
Nov 18, 2008
Messages
175
Diagnosis
11/2008
Country
US
State
ut
City
park city
Meggers posted with familial at 25
 

Valya

Distinguished member
Joined
Sep 28, 2008
Messages
127
Reason
Other
Country
US
State
TX
City
Austin
My son is DXed. He's 18. He doesn't use the forum though.

Valya
 

bryan12

Member
Joined
Jan 29, 2009
Messages
17
Reason
Learn about ALS
Country
MAS
State
selangor
City
kuala lumpur
is really is that common in young people?
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
I don't think it is that it is more common but more young people have computers now than say 10 or 15 years ago. I don't have any hard statistics for this, it's just an observation. We have quite a few young people here who THINK they have ALS but probably less than a dozen out of a few thousand members that actually have a diagnosis.

AL.
 

Kevinski

Active member
Joined
May 23, 2006
Messages
70
Reason
PALS
Country
CA
State
Alberta
City
Calgary
i am in calagary and he is tops in his field the youngest patient and only one that young was 19 so it i svery rare to see cases definitly under thirty
 

lindsaydisbrowe

New member
Joined
May 4, 2009
Messages
6
Reason
CALS
Country
CA
State
Ontario
City
St Thomas
hi there...my boyfriend Steve is 30 now, but was diagnosed in 2004 when he was 24. It is very a very difficult diagnosis at his age. We have an amazing support system and Steve has LOTS of ideas, so if anyone needs any help or ideas on how to work with certain things, please do not hesitate to ask.
 

BLPhill

Distinguished member
Joined
Oct 10, 2008
Messages
211
Reason
PALS
Diagnosis
09/2008
Country
US
State
WA
City
Tacoma
Scarlett is only 16
 

Zaphoon

Extremely helpful member
Joined
Aug 2, 2008
Messages
2,855
Reason
DX UMND/PLS
Diagnosis
08/2011
Country
US
State
Missouri
City
Springfield
A 16 year old girl was diagnosed with ALS in my city. It had a very, very aggressive start.
 

Valya

Distinguished member
Joined
Sep 28, 2008
Messages
127
Reason
Other
Country
US
State
TX
City
Austin
I saw a a local news segment on Youtube, which featured a 16 year old with ALS. I don't remember what TV station or city, but can research it again if necessary.
 

Zaphoon

Extremely helpful member
Joined
Aug 2, 2008
Messages
2,855
Reason
DX UMND/PLS
Diagnosis
08/2011
Country
US
State
Missouri
City
Springfield
Valya,

It was probably the 16 year old from Springfield, MO. There is a you tube blurb on her from one of the local T.V. stations. I've never seen nor heard of ALS taking someone down so fast as it did this girl.
 

bmb3641

Member
Joined
May 11, 2008
Messages
18
Reason
PALS
Diagnosis
10/2007
Country
US
State
Montana
City
Columbia Falls
Just turned 30 been dealing with this for a few years. Just got back from als clinic in seattle today and its spread to both hands but my breathing went from 95% to 97%. And retierd from bnsf this week also. So there are young people dealing with this
 
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