robertmanville
New member
- Joined
- Apr 22, 2021
- Messages
- 6
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
Hello,
First i would like to thank you for your time.
I have been followed by several doctors including neurologists but no one can provide me with answers. Could someone please share your thoughts on the following symptoms which started in early 2019:
- Night sweats = Started in early 2019. Had 20 night sweats in a row but stopped just like that. This was the first symptom that lead me to the doctor.
- One sided facial weakness = Sensations alter from severe to mild and are around the cheek bone only.
- Vocal cord pain = Ups and downs on pain. Some days i don't have vocal cord pain and some others i don't. Speaking also feels effortful (at times). It feels like you exercised really hard. You know that feeling?
- Sacroiliac paint = Pain around buttock (especially left) hurts all the time and gets worse with Hip twisting and bending and walking.
- Vertigo = Vertigo when i am in crowded spaces like malls or walking on the street.
- Hands falling asleep = Hands fall asleep especially at night when sleeping on my stomach. MRI shows severe stenosis C5-6-7.
- Extreme exhaustion = Ups and downs and need to tack period naps during the day. Never had this before 2019.
- Feet pain = I always need to wear shoes / slippers. Very difficult to walk on hard floors.
- Overall Malaise = Just feels like everything is an effort.
With all these issues going on, I am still able to play competitive hockey and continue with my days. I can still lift heavy weights, write, type very quick (75 words a min), do push ups (30 in a row +) walk 20Kms in a row but i'm just not feeling well.
Questions: 1) Would i be in worse shape if it was ever ALS and this after 2 years since onset? 2) I understand ALS does not cause pain, so am i write to say when i walk or talk, as discussed earlier, i shouldn't have any pain in my buttock or vocal cords?
Thank you for your time.
Robert
First i would like to thank you for your time.
I have been followed by several doctors including neurologists but no one can provide me with answers. Could someone please share your thoughts on the following symptoms which started in early 2019:
- Night sweats = Started in early 2019. Had 20 night sweats in a row but stopped just like that. This was the first symptom that lead me to the doctor.
- One sided facial weakness = Sensations alter from severe to mild and are around the cheek bone only.
- Vocal cord pain = Ups and downs on pain. Some days i don't have vocal cord pain and some others i don't. Speaking also feels effortful (at times). It feels like you exercised really hard. You know that feeling?
- Sacroiliac paint = Pain around buttock (especially left) hurts all the time and gets worse with Hip twisting and bending and walking.
- Vertigo = Vertigo when i am in crowded spaces like malls or walking on the street.
- Hands falling asleep = Hands fall asleep especially at night when sleeping on my stomach. MRI shows severe stenosis C5-6-7.
- Extreme exhaustion = Ups and downs and need to tack period naps during the day. Never had this before 2019.
- Feet pain = I always need to wear shoes / slippers. Very difficult to walk on hard floors.
- Overall Malaise = Just feels like everything is an effort.
With all these issues going on, I am still able to play competitive hockey and continue with my days. I can still lift heavy weights, write, type very quick (75 words a min), do push ups (30 in a row +) walk 20Kms in a row but i'm just not feeling well.
Questions: 1) Would i be in worse shape if it was ever ALS and this after 2 years since onset? 2) I understand ALS does not cause pain, so am i write to say when i walk or talk, as discussed earlier, i shouldn't have any pain in my buttock or vocal cords?
Thank you for your time.
Robert