michelleann80
Member
- Joined
- Sep 12, 2015
- Messages
- 21
- Reason
- CALS
- Diagnosis
- 09/2015
- Country
- US
- State
- NC
- City
- Clemmons
Good Evening,
I have been reading many posts on these forums, and I guess I was looking for information, that would make me think there was no way my husband could have ALS, but sadly, it is the opposite. A little background- In August of 2014 my husband broke his ankle on a rocky beach. It was a clean break, and should have been healed in a couple months. But, his limp on his right side, was not getting better, but much worse. He would stomp around the house, and I would be like why are you stomping your feet like that?!
A few months ago, he fell in the kitchen, hard, on his face. I came to find out this wasn't the first time this had happened. I completely freaked out and we went to CVS to buy him a cane. And called the orthopedic doctor, he had seen for his ankle, to see what was going on. The orthopedic doctor said his symptoms, had nothing to do with his previously broken ankle. He then referred us to a neurologist. We went to see the neurologist, he recommended a MR Lumbar Spine MRI, was thinking maybe a pinched nerve in his back? Got the results the same day, no nothing troubling with that MRI. Had an appt. the next day for a MR Brain without contrast. Again, nothing to explain his symptoms. He got a RX for an AFO and we were able to get that custom fitted and had it the very next day. He then had him go through nerve testing. His right calf has considerable muscle loss, it is I would say less than half a size smaller than his other calf. Anyways, his nerves are so bad, there was no response in his right leg, and a little response from his left leg. We go see the neurologist after this test, and tells us we will need to go to the ALS center so he can be tested for ALS. He is 39 years old, to young for this, isn't he? He can barely walk with the cane. His limp is so severe. He has such difficult time walking. Even with a cane, he has fallen. He has many charley horse cramps as well. He has an appt. on Monday 9/14 for ALS testing. Can anyone tell me what kind of tests he should expect, and when we may receive the results from those tests? Thank you so much for reading, and any comments are welcome! Thanks again!
I have been reading many posts on these forums, and I guess I was looking for information, that would make me think there was no way my husband could have ALS, but sadly, it is the opposite. A little background- In August of 2014 my husband broke his ankle on a rocky beach. It was a clean break, and should have been healed in a couple months. But, his limp on his right side, was not getting better, but much worse. He would stomp around the house, and I would be like why are you stomping your feet like that?!
A few months ago, he fell in the kitchen, hard, on his face. I came to find out this wasn't the first time this had happened. I completely freaked out and we went to CVS to buy him a cane. And called the orthopedic doctor, he had seen for his ankle, to see what was going on. The orthopedic doctor said his symptoms, had nothing to do with his previously broken ankle. He then referred us to a neurologist. We went to see the neurologist, he recommended a MR Lumbar Spine MRI, was thinking maybe a pinched nerve in his back? Got the results the same day, no nothing troubling with that MRI. Had an appt. the next day for a MR Brain without contrast. Again, nothing to explain his symptoms. He got a RX for an AFO and we were able to get that custom fitted and had it the very next day. He then had him go through nerve testing. His right calf has considerable muscle loss, it is I would say less than half a size smaller than his other calf. Anyways, his nerves are so bad, there was no response in his right leg, and a little response from his left leg. We go see the neurologist after this test, and tells us we will need to go to the ALS center so he can be tested for ALS. He is 39 years old, to young for this, isn't he? He can barely walk with the cane. His limp is so severe. He has such difficult time walking. Even with a cane, he has fallen. He has many charley horse cramps as well. He has an appt. on Monday 9/14 for ALS testing. Can anyone tell me what kind of tests he should expect, and when we may receive the results from those tests? Thank you so much for reading, and any comments are welcome! Thanks again!