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New member
- Joined
- Oct 26, 2018
- Messages
- 5
- Reason
- Learn about ALS
- Country
- GER
- State
- Saxony
- City
- Leipzig
My problems started all 3 months ago. Everything was fine before. After some extensive jogging, my calfs felt stiff. Ok, thats maybe normal, i thought. But it didn`t disappear. Also, i mentioned twitching on both sides. After doing some more sports in the next two weeks, twitching was more extensive after it. Then my arms felt strange and my little finger on the left limb sometimes got "deaf" in night. I went to the neurologist, he did EMG in the left hand, and said it is the ulnaris nerve because of my work (software developer). But nothing serious. He asked me if I feel weakness, but I said no.
The next few weeks I googled a lot about twichting and weakness, and got more worried about ALS. In the next weeks I got all the symptoms i read about. I checked my body for weakness over and over again.
CK Value was checked and above 1000 (aber football and long bicycle tour and EMG), 3 weeks after it was normal again. But I had the feeling that my left leg was weaker then the other, that my arm is getting weaker, my stomach muscles felt stiff. In some positions i got pain in my shoulder. I was sweating a lot in the night or when doing sports. Standing or sitting getting more difficult, I get pain oder just trembling on my back. Also the other small finger on the right side is getting "deaf" sometimes at night.
My feeling until today is, its getting more worse everyday. When I speak or sing, I don`t get enough air. Also I feel sometimes some "blocking" when breathing. My tongue looks strange on the side, using laptop or phone causes my hands to sweat immediately and getting stiff. Since a few days, there is more saliva in my mouth. Fasciculations happen on my complete body on different parts (always very short), including pine. I check every movement if its normal or something strange. It feels like if i`m using any muscle, it gets tires very soon or start trembling.
In the 3 months, I visited 3 Neurologists. They did EMG of calfs,shin, biceps, hands. Benigm fasciculations were detected in the calfs. All other diagnosis was normal (CT, MRI spinal, EEG, ENG). They did not see any weakness. My last try is the University hospital next week. Friends and family don`t really understand, because they always say that i`m looking and doing stuff in a normal way. But in my inside, it does feel very strange. Docs say, that I have an generalized anxiety disorder. I can`t believe that, these symptoms are real and visible. I`m very worried.
The next few weeks I googled a lot about twichting and weakness, and got more worried about ALS. In the next weeks I got all the symptoms i read about. I checked my body for weakness over and over again.
CK Value was checked and above 1000 (aber football and long bicycle tour and EMG), 3 weeks after it was normal again. But I had the feeling that my left leg was weaker then the other, that my arm is getting weaker, my stomach muscles felt stiff. In some positions i got pain in my shoulder. I was sweating a lot in the night or when doing sports. Standing or sitting getting more difficult, I get pain oder just trembling on my back. Also the other small finger on the right side is getting "deaf" sometimes at night.
My feeling until today is, its getting more worse everyday. When I speak or sing, I don`t get enough air. Also I feel sometimes some "blocking" when breathing. My tongue looks strange on the side, using laptop or phone causes my hands to sweat immediately and getting stiff. Since a few days, there is more saliva in my mouth. Fasciculations happen on my complete body on different parts (always very short), including pine. I check every movement if its normal or something strange. It feels like if i`m using any muscle, it gets tires very soon or start trembling.
In the 3 months, I visited 3 Neurologists. They did EMG of calfs,shin, biceps, hands. Benigm fasciculations were detected in the calfs. All other diagnosis was normal (CT, MRI spinal, EEG, ENG). They did not see any weakness. My last try is the University hospital next week. Friends and family don`t really understand, because they always say that i`m looking and doing stuff in a normal way. But in my inside, it does feel very strange. Docs say, that I have an generalized anxiety disorder. I can`t believe that, these symptoms are real and visible. I`m very worried.