Eddie1971
New member
- Joined
- Oct 24, 2021
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
- State
- ST
- City
- STAFFORD
Good day
I'm a 50 year old male , living in uk, fir the last 13 months I've been worried about symptoms of mnd, I started to have all over muscle twitching followed a few months later by swallowing problems, I visited my gp who reffered me to a neurologist, he carried out a full clinical exam , this was all normal , I then had a extensive emg/ncs study carried out again all very normal
I came away reassured, this went on for 8 months , I then had a video barrium swallow test
A hiatus hernia was found with a bit off acid reflux, but the ent consultant also found that the hypopharynx and pirifossa muscles went opening correctly, he advised gaviscon, the muscle twitching carried on and involuntarily swallowing, I then had a private emg at a university hospital in Birmingham, again this was extensive, on all four limbs, and under my chin, all that was found was a few occasional fasiculation on the calf muscles , I asked the dr what this meant , he said its beignign ,as there is no other findings, he said there were no signs of mnd and to relax , since then I have had covid for 6 weeks , gp was checking me over last week as I'm suffering from what looks like long covid and he noticed muscle wastage on my left forearm , I'm very worried now , especially with the on going swallowing issues , I'd like to add that ive had nasal drip and thick secretions in back of throat for last 13 months and a continuous mettalic taste in mouth, my concerns is this a form of mnd , I'm just a normal working family man ,and not one to moan about a few aches and pains or colds but this is really concerning me now.
Thanks to anyone who has the kindness to reply what this could be.
Kind regards
Eddie
Sorry I forgot to add , another one of the symptoms, sweating once I've had a hot drink or warm meal or if theres a slight temperature increase, mainly round the neck chest and elbow pits.
Kind regards
Eddie
I'm a 50 year old male , living in uk, fir the last 13 months I've been worried about symptoms of mnd, I started to have all over muscle twitching followed a few months later by swallowing problems, I visited my gp who reffered me to a neurologist, he carried out a full clinical exam , this was all normal , I then had a extensive emg/ncs study carried out again all very normal
I came away reassured, this went on for 8 months , I then had a video barrium swallow test
A hiatus hernia was found with a bit off acid reflux, but the ent consultant also found that the hypopharynx and pirifossa muscles went opening correctly, he advised gaviscon, the muscle twitching carried on and involuntarily swallowing, I then had a private emg at a university hospital in Birmingham, again this was extensive, on all four limbs, and under my chin, all that was found was a few occasional fasiculation on the calf muscles , I asked the dr what this meant , he said its beignign ,as there is no other findings, he said there were no signs of mnd and to relax , since then I have had covid for 6 weeks , gp was checking me over last week as I'm suffering from what looks like long covid and he noticed muscle wastage on my left forearm , I'm very worried now , especially with the on going swallowing issues , I'd like to add that ive had nasal drip and thick secretions in back of throat for last 13 months and a continuous mettalic taste in mouth, my concerns is this a form of mnd , I'm just a normal working family man ,and not one to moan about a few aches and pains or colds but this is really concerning me now.
Thanks to anyone who has the kindness to reply what this could be.
Kind regards
Eddie
Sorry I forgot to add , another one of the symptoms, sweating once I've had a hot drink or warm meal or if theres a slight temperature increase, mainly round the neck chest and elbow pits.
Kind regards
Eddie