Lucyb
Member
- Joined
- Jun 11, 2020
- Messages
- 18
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- UK
- State
- UK
- City
- London
Hi. Thank you for accepting me into this forum, it is very much appreciated. I have been increasingly worried about my symptoms over the last few weeks. I have a diagnosis of chiari malformation type 1, however my symptoms do not match chiari malformation. My maternal grandmother had motor neurone disease disease at 68 and passed when she was 71, so I know this increases my risk of ALS.
I am a 26 years female. My symptoms are muscle twitching in my arms, leg (right calf), thighs, tops of foot, tops of arms and my back. I’ve had muscle twitching since around August 2018. I also suffer from a lump type feeling in my throat which begun around late 2018 also. However more so recently I have an increased tightness in my throat constantly that does not ease, lump/mucus feeling in my throat that will not clear and it feels that I am slurring my words that no one else around me can hear but I can hear it myself.
My thighs have become thinner over time and my calf muscle in my right leg is smaller than my left and the muscle is very soft, the calf actually looks a different shape to my left calf. I have tingling in the muscle constantly and just a horrible feeling in general in the muscle. I have left side shoulder pain and a dent in my deltoid muscle which I haven’t had before, I also have weight loss and lack of appetite. I get tingling in my arms also. I also have what feels like my right foot and right hand feels disconnected from my body but I can still use the both of them.
I had an EMG in my left leg, calf and thigh muscle in February 2020 and a nerve conduction study on my right side body (arm, wrist, ankle and leg) and the results were normal. Would this be enough to rule out ALS and does it sound like I am describing would could be ALS? I would appreciate any response I can get, I am very worried unfortunately.
I am a 26 years female. My symptoms are muscle twitching in my arms, leg (right calf), thighs, tops of foot, tops of arms and my back. I’ve had muscle twitching since around August 2018. I also suffer from a lump type feeling in my throat which begun around late 2018 also. However more so recently I have an increased tightness in my throat constantly that does not ease, lump/mucus feeling in my throat that will not clear and it feels that I am slurring my words that no one else around me can hear but I can hear it myself.
My thighs have become thinner over time and my calf muscle in my right leg is smaller than my left and the muscle is very soft, the calf actually looks a different shape to my left calf. I have tingling in the muscle constantly and just a horrible feeling in general in the muscle. I have left side shoulder pain and a dent in my deltoid muscle which I haven’t had before, I also have weight loss and lack of appetite. I get tingling in my arms also. I also have what feels like my right foot and right hand feels disconnected from my body but I can still use the both of them.
I had an EMG in my left leg, calf and thigh muscle in February 2020 and a nerve conduction study on my right side body (arm, wrist, ankle and leg) and the results were normal. Would this be enough to rule out ALS and does it sound like I am describing would could be ALS? I would appreciate any response I can get, I am very worried unfortunately.
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