Mairin
New member
- Joined
- Sep 20, 2019
- Messages
- 1
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- MO
Hi, thank you for your time reading this post. My husband began started having some minor arm fasiculations in 2016, Dec. I believe. He already had a Dx of Achalasia-nerves not working in esophagus causing a motility problem w/swallowing.,decades. He also has had sleep apnea for years. Has Cpap.I gave him minerals and vitamins to see if that was the issue. No help.
I noticed his muscles were wasting away in his forearms and shoulder areas. I attributed it to being a construction superintendent rather than journeyman doing the work. When he went back to physical work, I felt his muscles return. I relaxed. However, they didn't return all the way. Meantime, the fasiculations have spread to other side and chest and muscles have really wasted. His dominant arm which started fasics first, is clearly now smaller than other arm., even he remarked on it. He feels like he can't get enough air laying down sometimes and has to turn a lot.
At my insistence, He went to a new primary since we moved towns. This doc told him "shakes" are normal and that it's "getting older".(52) Doc said That "ALS always begins in the tongue" & he "had a friend with it." I wish that doc could google it. He never looked at the muscles to see these twitchings, which are constant & quite visible, nor tested reflexes nor looked at the atrophy.
My husband has admitted to feeling weakness and not being as strong, (which he has always been remarkably stronger than others...big boned, former football player, etc.) Now feels fatigue and definitely notices the twitching. He drools sometimes and says,"Oops making too much saliva!" He's lost weight since he got on keto 3 weeks ago but I know he had lost muscle mass before we began keto. So its down 20 lbs since June 3rd.which was his doc appt.
My husband tells me, "Well, if it's ALS, there's nothing to cure it. Guess we will find out eventually one way or another." Is he correct to ride this out and see?
Should I press him to go back to doctor?
I noticed his muscles were wasting away in his forearms and shoulder areas. I attributed it to being a construction superintendent rather than journeyman doing the work. When he went back to physical work, I felt his muscles return. I relaxed. However, they didn't return all the way. Meantime, the fasiculations have spread to other side and chest and muscles have really wasted. His dominant arm which started fasics first, is clearly now smaller than other arm., even he remarked on it. He feels like he can't get enough air laying down sometimes and has to turn a lot.
At my insistence, He went to a new primary since we moved towns. This doc told him "shakes" are normal and that it's "getting older".(52) Doc said That "ALS always begins in the tongue" & he "had a friend with it." I wish that doc could google it. He never looked at the muscles to see these twitchings, which are constant & quite visible, nor tested reflexes nor looked at the atrophy.
My husband has admitted to feeling weakness and not being as strong, (which he has always been remarkably stronger than others...big boned, former football player, etc.) Now feels fatigue and definitely notices the twitching. He drools sometimes and says,"Oops making too much saliva!" He's lost weight since he got on keto 3 weeks ago but I know he had lost muscle mass before we began keto. So its down 20 lbs since June 3rd.which was his doc appt.
My husband tells me, "Well, if it's ALS, there's nothing to cure it. Guess we will find out eventually one way or another." Is he correct to ride this out and see?
Should I press him to go back to doctor?