laceworx1
New member
- Joined
- Jul 15, 2008
- Messages
- 5
- Diagnosis
- 06/2004
- Country
- US
- State
- california
- City
- los angeles
So I got diagnosed 4 years ago with BFS. I experience twitching ALL OVER MY BODY almost DAILY. When I get more stressed out, I have more. I have them in my tongue and everywhere else. When my body is fighting off sickness I twitch more. When im Pissed off, I twitch more. I remember the first year was gruling. Sometimes even still my brain says its hard to swallow, or ill slur, but it comes right back to where im supposed to be and im fine. The twitching goes on vacation sometimes, but always returns. Sometimes RIGHT AFTER I twitch the muscle that was twitching will feel wierd or week for a moment but again, returns quickly in a matter of seconds back to normal. I fire off in my feet, neck, face, back, front, eye, leg, fingers etc.. 4 years ago I had a clean EMG. For some reason I didnt twitch in the dr's office. I have also had that feeling of girgling type twitches under my skin. I feel sometimes like fireworks just go off in my body
Ok, here lies the worry part. The ONLY reason I am worried, and maybe someone with ALS can help me feel better. I worry because, I have a neuro appt on AUGUST 1st, to go get checked out. 2nd because I heard of some doctor who had twitches for 15 years before being diagnosed with ALS, so im a little worried, and guess WHAT WORRYING IS DOING TO MY BFS. Since I made the appt, IM LIKE THE DISNEY LAND FIREWORKS show in my body. Sorry, its been going on for 4 years and I have to laugh at it a little. I also suffer from crohn's disease and osteoperosis from the crohn's. I personally think a lot of my twitches and AGAIN THIS IS JUST ME SAYING THIS and not a dr, but I think it has to do with dehydration and malnutrition. Anyhow my swallowing and feeling like there is a lump in my throat and hoarsness (WHICH I DO GET) is due to GERD. Acid reflux disease, and PEOPLE THAT ARE SCARED OF ALS, ( you freaking out will cause acid reflux and more twitching BTW)
Well, thank you for reading my novel and I hope to hear from someone about the 15 year thing and for me not to worry to much about my tongue twitching. Again I have not had a EMG in 4 years and or seen a neuro so im a little scared.
:-?
Ok, here lies the worry part. The ONLY reason I am worried, and maybe someone with ALS can help me feel better. I worry because, I have a neuro appt on AUGUST 1st, to go get checked out. 2nd because I heard of some doctor who had twitches for 15 years before being diagnosed with ALS, so im a little worried, and guess WHAT WORRYING IS DOING TO MY BFS. Since I made the appt, IM LIKE THE DISNEY LAND FIREWORKS show in my body. Sorry, its been going on for 4 years and I have to laugh at it a little. I also suffer from crohn's disease and osteoperosis from the crohn's. I personally think a lot of my twitches and AGAIN THIS IS JUST ME SAYING THIS and not a dr, but I think it has to do with dehydration and malnutrition. Anyhow my swallowing and feeling like there is a lump in my throat and hoarsness (WHICH I DO GET) is due to GERD. Acid reflux disease, and PEOPLE THAT ARE SCARED OF ALS, ( you freaking out will cause acid reflux and more twitching BTW)
Well, thank you for reading my novel and I hope to hear from someone about the 15 year thing and for me not to worry to much about my tongue twitching. Again I have not had a EMG in 4 years and or seen a neuro so im a little scared.
:-?