Jody422
New member
- Joined
- Aug 25, 2020
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- MD
- City
- La plata
Hi all. Looking for some advice. I saw a neurologist today and explained my main symptom. Weakness in my quads. It presents as legs shaking when i walk down stairs. It has been going on for about 9 months. She says she can see marked bilateral weakness in both legs. While i was sitting on the bed/chairs with my legs hanging over, if I raise the knee and leg straight upwards they start shaking and are weak. If i lift either foot on the heel or toe the foot or calves start shaking. She said “I wont bs you, als is a concern “. But then told me other things that are not pointing at als such as symmetrical weakness. Im waiting for them to schedule me a MRI of thoracic and cervical spine. Then she wanted to have me go to johns hopkins for a muscle biopsy because they have a very good muscle pathologist. Following that would be a NCS/EMG. My question is obviously could this be a slowly progressing form or really, if anyone has had a similar experience. I fully appreciate most posts in this forum are not ALS and I mean no disrespect. Thanks for any thoughts.