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Vickyk1980

New member
Joined
Dec 3, 2014
Messages
6
Reason
Learn about ALS
Country
UK
State
CH48 3HF
City
West Kirby
Hi, I have just joined today. I'm looking for advice really..

At the start of September I developed a muscle twitch in my lower left eyelid. It happens every day and is worse on waking in the morning. I have seen my GP who told me its nothing more tha tiredness and stress.

Then a few weeks ago I developed a twitch in my face on the left side and that one has got steadily worse and is constant. I went back to my GP who was fairly uninterested but referred me to an Endochrinologist (not sure why). I saw him (he is a Professor) and he did a full physical neurological examination and told me everything looked fine and he didn't think there was a need for any scans unless I developed any new symptoms..

Last week I developed a constant twitch in my left calf muscle, it is there all the time along with the facial and eye twitches. My Specialist is off now until January so I'm just looking for a little advice really, does this sound like it could be ALS? I hope its ok to ask these questions here.

Vicky.
 
Try reading the stickies for this subforum like you were supposed to do before posting your question. Your answer is found there
 
Hi Dalvin,

Apologies I will do now.

Thanks for your reply.

Vicky.
 
Looks like Vicky read the sticky and left, well done Dalvin :)

Another thread that can be closed happily
 
No I'm still here.

Thank you both very much for your advice and comments.

Vicky.
 
You shouldn't be here. You don't have ALS. This forum is for people who truly have ALS and for their caretakers and loved one's who support them. It isn't to play doctor to other people's health issues. Please kindly leave here and see a doctor instead for your issues. Thanks!
 
Hi Skipper,

Thats why I posted in this part which people question their symptoms in and joined stating 'I am interested in Learning..'

Thank you for your reply though and yes this thread should now be closed.

Vicky.
 
I wish you the greatest of respect and will leave your forum now.

Thank you for your time.

Vicky.
 
Vicky, sometimes members forget the paragraph below the title of this sub-Forum. So, I'll post it below,

Do I Have ALS? Is This ALS? (306 Viewing)
Have symptoms? Not sure if you have ALS, or what ALS is? Would you like to ask a general question about ALS symptoms? Please post all related questions to this forum.

You chose the right Forum Interest: "I am interested in learning about ALS/MND" and there is "Other" also.
(And... it includes MNDs.)

However, this Forum does get abused by those who are obsessed they have ALS when it's really full blown anxiety, psychological problems or disorders they are in denial over that are not ALS and refuse to leave... for months. They re-hash non ALS/MND symptoms by re-phrasing them, updating them and many times... just repeating them in replies to Threads started by others. It has worn the patience of some members thin who reply most often to this sub-Forum.

I don't believe that was your case. Let us know what your specialist said after January.
 
Vicky I see your a Brit like me, I believe that you are near Sheffield in the north which has a top notch MND centre, I wish you well and hope you don't have a reason to become a member of a club no one wants, if you do this place is great and you might also consider the british equivalent, just google MNDA forum and it will lead you there
 
Hello,

Thank you both for your responses and I am genuinely sorry to have caused any offense.

Vicky.
 
Vicki, I wasn't offended or trying to be offensive. Just wanted you to read the stickies as your question was answered there. If after reading them, there was something you didn't understand you can feel free to ask for clarification
 
Hi Vicky

It sounds like a case of BFS (Benign Fasiculation Syndrome). Have a look at the aboutbfs site. There is lots of information on there. I have to say that my problems are ongoing and I do come here to read the posts. There's a lot of nastiness here towards people who are just looking for information. If you can't be nice then I would say don't bother replying. No offence to anyone on these forums since I am sure life is pretty tough but it just amazes me how mean some of you are. On the other hand the MND site in the UK feels different - more benign and less bristly to people who are searching for info.

Anway Vicky good luck and I don;t think you should have anything to worry about.
 
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