Callmerouge
New member
- Joined
- Mar 4, 2020
- Messages
- 3
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- CA
- State
- BC
- City
- Victoria
Hello Everyone!
My name is Sean, I am from Canada currently living in Japan, and I have experienced neurological symptoms for the past 7 years (since grade 10, 16 years old) now 22 years old I have gotten almost every test in the book and tests keep coming back negative all leading nowhere... I have predominantly sensory symptoms (feels like half of my. Body doesn't belong to me and loss of sensation) and this weird feeling that my vision is split (right and left eye) I have not had an EEG but a NCS and a brain and spine mri (2 of each) also many blood tests and neurological examinations. But, they all tell me stop worrying about ALS you don't have it. I have worried about ALS since high school and I can't seem to get it out of my head, either that or MS...
Recently (day after another neurological exam) I got twitches on my shoulder and leg and hip... Hours after the exam (in which I was told I have no weakness nor functional weakness) I should also mention I have have a congenital posterior arachnoid cyst that I just recently found out about while living in Japan, and boy oh boy... That sent me down a rollercoaster of emotions and questions. But it's aysymptomatic and hast grown. I occasionally feel like I have weakness down the right side of my body like a complete split from top to bottom.
The sensory symptoms have never left me and only get worse during high times of stress or when I get the flu or bronchitis something like that. But, they never go away and I am not malingaring or faking anything for attention whatsoever! I will be getting married in Japan next December and I have to leave my fiancé for 6 months while I had back to Canada to get all my stuff and to see family for a while before I make the permenant move to Japan, so I am dealing with allot right now both physically and emotionally.
I also feel like my typing is getting worse, although I am able to ride my bike everyday to and from work. And walk up mountains and all that... I also started to develop bad brain fog and it seems to have gotten worse since December, so that's scaring me the most out of all my symptoms right now besides the weird sensory smyptoms... And of course the coronavirus.
So as you all can see from my story is that I am very worried and stressed right now, and I don't know if what I have is ALS or something functional such as (Functional Neurological disorder) which is very hard to diagnose which is why I think It might be that instead... I also have devloped heart palpitations and occasional stomach issues but an upper endoscopy showed a normal stomach and esophagus besides a begnin polyp. I also had an echo of my heart and EKG done 4 times showing results of a slight (sinus tachycardia) thanks to everyone who has read through my story and my worries. Much appreciated,
Sean
My name is Sean, I am from Canada currently living in Japan, and I have experienced neurological symptoms for the past 7 years (since grade 10, 16 years old) now 22 years old I have gotten almost every test in the book and tests keep coming back negative all leading nowhere... I have predominantly sensory symptoms (feels like half of my. Body doesn't belong to me and loss of sensation) and this weird feeling that my vision is split (right and left eye) I have not had an EEG but a NCS and a brain and spine mri (2 of each) also many blood tests and neurological examinations. But, they all tell me stop worrying about ALS you don't have it. I have worried about ALS since high school and I can't seem to get it out of my head, either that or MS...
Recently (day after another neurological exam) I got twitches on my shoulder and leg and hip... Hours after the exam (in which I was told I have no weakness nor functional weakness) I should also mention I have have a congenital posterior arachnoid cyst that I just recently found out about while living in Japan, and boy oh boy... That sent me down a rollercoaster of emotions and questions. But it's aysymptomatic and hast grown. I occasionally feel like I have weakness down the right side of my body like a complete split from top to bottom.
The sensory symptoms have never left me and only get worse during high times of stress or when I get the flu or bronchitis something like that. But, they never go away and I am not malingaring or faking anything for attention whatsoever! I will be getting married in Japan next December and I have to leave my fiancé for 6 months while I had back to Canada to get all my stuff and to see family for a while before I make the permenant move to Japan, so I am dealing with allot right now both physically and emotionally.
I also feel like my typing is getting worse, although I am able to ride my bike everyday to and from work. And walk up mountains and all that... I also started to develop bad brain fog and it seems to have gotten worse since December, so that's scaring me the most out of all my symptoms right now besides the weird sensory smyptoms... And of course the coronavirus.
So as you all can see from my story is that I am very worried and stressed right now, and I don't know if what I have is ALS or something functional such as (Functional Neurological disorder) which is very hard to diagnose which is why I think It might be that instead... I also have devloped heart palpitations and occasional stomach issues but an upper endoscopy showed a normal stomach and esophagus besides a begnin polyp. I also had an echo of my heart and EKG done 4 times showing results of a slight (sinus tachycardia) thanks to everyone who has read through my story and my worries. Much appreciated,
Sean
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