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Hey Dusty isn't it interesting (or boring really, but momentarily interesting) that there are more who come here screaming for us to tell them they are dying, than true PALS?
Tillie

"Incidence and Prevalence: Hypochondriasis can occur at any age but peaks in adolescence and during middle age (Maleki). Men and women appear to be affected equally (Phillips 603). The disorder's prevalence in the US is estimated to be between 3% and 5%"

Tillie, it is because they outnumber us about 3000:1.
 
, it is because they outnumber us about 3000:1.

Oh my, then in actual fact we are lucky that we only catch this many in the net (pun intended)

Thanks for that research media :)
 
Harold, all this proves is that there really is equality in the sexes :)
 
Max. I refuse to be taken down that road. If my wife ever thought there was equality.....
 
“Originally Posted by affected
Hey Dusty isn't it interesting (or boring really, but momentarily interesting) that there are more who come here screaming for us to tell them they are dying, than true PALS?
Tillie”

Yes, and I think it’s sad that a majority of the DIHALSers want to be told they have ALS. A small number are really happy and thank us when we explain that what they have is probably a radic or something sensory or something treatable or that more test need to be done. That makes you feel the time spent answering them was well spent.

Those who just want to argue when you explain why their symptoms don’t sound like ALS (and explain their new symptoms and expand their old symptoms) are not worth talking to, so I try to limit myself to no additional responses to them. If I explain why I don’t believe they have ALS and they come back claiming they do, then I don’t believe their problem is not ALS.
 
**UPDATE**

Just got a copy of my Rheumatologist report regarding the pain in my left leg which states:-

"Examining him today, he did have a positive neural slump and straight leg raise on the left the joints themselves were normal. There is no obvious sensory loss but the ankle jerk was slightly reduced on the left compared to the right".

It does seem that there is a radicular component to this and as I can not find any other possible cause for this I am ordering an MRI scan of the lumbar spine".

This has got me even more worried about ALS/MND, he never mentioned anything about any kind of Neurological issue when I saw him a month ago.
 
Those findings are all consistent with a spinal issue as your rheumatolgist commented " radicular" hence the MRI of the spine. Not one of those things are found in ALS/ MND. Please focus your further research on those issues rather than on a disease you do not have, have no symptoms of,and are not suspected of having by your physician
 
I know that Radicularpathy can be caused by other neurological conditions but given the above information and that I've had twitching in my lrft leg in the knee, thigh and ankle for quite a few months now surely that points to ALS more? So worried and anxious now.
 
信じられない!


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Max - Sunday, July 27, 2014 5:48:00 PM
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onset 9/2010, diagnosed with ALS by Stanley Appel 8/29/2013
It Is What It Is ...

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Hi Nikki, thank you very much for your reply, that's helpful, what bout the reduced ankle jerk on the left side? The positive neurl slump and he straight leg raise? I've had twitching in my left leg for at least 3-6 months now also.
 
Did you not read what I said ? those are not findings in a clinical exam of ALS. They are findings in lumbar radiculopathy and certainly point away from ALS. Twitches as we tell people endlessly are common and have a myriad of benign causes
 
I've been diagnosed with COPD this week after waiting a few months and at 32 that was a big shock, I hope so much I don't have ALS too!

I only have twitching in the left leg, nowhere else.
 
now surely that points to ALS more? So worried and anxious now.

So you've diagnosed the issue. Yup you got it. 100%. Sure as shootin'.

Does that make you feel better?
 
In your first Thread you wrote,

("Concerned about several issues such as:

*Shallow Breathing/Constant Yawning and Gasping
*Sometimes having trouble getting words out
*Pain in the left leg mainly in thigh/knee
*Twitching mostly in the left leg but also in other areas

I've had constant and excessive yawning for at least 4-5 years or more, the gasping for air/shortness of breath I have had for around 3 years now, I have had Asthma for nearly 30 years, although I know these issues aren't due to Asthma and I don't have wheezing/coughing. I am seeing a Respiratory Specialist in 2 months time.")

BUT THEN YOU WROTE,

("The same month this started (October) I went to see a Neurologist because of Headaches, I also mentioned the leg twitching, he tested my reflexes and everything and he seemed happy enough that everything was ok, I had a Brain MRI was was completely normal.")

With all your ills that you are now trying to convince yourself (and us) of being ALS... you went to see a neurologist for HEADACHES !? and then say to the neuro, "Oh by the way... I have "twitches" in my left leg."

You need help and doubtfully it will come from a neurologist... but maybe he /she will recommend a good shrink that you really need to see.
 
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