Foxich109
New member
- Joined
- May 17, 2021
- Messages
- 8
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
Hello, new to the site and mainly looking for some advice/guidance. I appreciate there are people here who have actual diagnosis of ALS and i cannot express enough sympathy for all who have and pray your life is filled with as much happiness as possible. Thank you for taking time to read, I would just like some views of people who are more aware of the condition than that of my family for example who are dismisses of my worries and advise me that it is health anxiety over anything else.
I have been experiencing odd sensations in the arches of both my feet since mid Jan, almost like I could feel blood running though them, bubbling or walking with shoes and wet socks on if that makes any sense? I had Constant fasciculations in them and then also into my calf’s into Feb/March.
By the end of March I experienced basically a zapping/tingling/shock type pain in both shoulders and upper arms and shins practically on the same day, as well as ongoing fasciculations in calf’s and feet. At this time I was still running a bit and felt ‘reasonable’.
Into early April and after discovering ALS Via google (I know, bad idea) I feel so much weaker than I thought, constantly checking my body which seems symmetrical but also like I’ve lost a lot of muscle around shins, thighs, forearms and bum. I seem to have fell off a cliff in terms of capabilities. Calf’s, triceps and hamstrings in particular feel so weak and preventing me running. The fasciculations now are practically all over, in my cheek, eyelid, calf’s and feet. I sciatica type pain when I am walking, My forearms feel very achy too. It seems quite symmetrical in terms of the whole situation but also seems progressive and I am petrified.
I have had bloods/brain and spine MRI all clear. Docs think I’m anxious, which I clearly am but can’t explain fasciculations and aches. Saw a Neurologist on Saturday who’s going to do EMG but he thinks I don’t have ALS (no clinical weakness). I feel a lot weaker than I normally am but can push a 60 year old docs arms up at the moment. Does anyone have any thoughts?
I am 32 have a beautiful young family that I wish I could concentrate on but this has consumed my whole life.
Thanks for listening.
Andy.
I have been experiencing odd sensations in the arches of both my feet since mid Jan, almost like I could feel blood running though them, bubbling or walking with shoes and wet socks on if that makes any sense? I had Constant fasciculations in them and then also into my calf’s into Feb/March.
By the end of March I experienced basically a zapping/tingling/shock type pain in both shoulders and upper arms and shins practically on the same day, as well as ongoing fasciculations in calf’s and feet. At this time I was still running a bit and felt ‘reasonable’.
Into early April and after discovering ALS Via google (I know, bad idea) I feel so much weaker than I thought, constantly checking my body which seems symmetrical but also like I’ve lost a lot of muscle around shins, thighs, forearms and bum. I seem to have fell off a cliff in terms of capabilities. Calf’s, triceps and hamstrings in particular feel so weak and preventing me running. The fasciculations now are practically all over, in my cheek, eyelid, calf’s and feet. I sciatica type pain when I am walking, My forearms feel very achy too. It seems quite symmetrical in terms of the whole situation but also seems progressive and I am petrified.
I have had bloods/brain and spine MRI all clear. Docs think I’m anxious, which I clearly am but can’t explain fasciculations and aches. Saw a Neurologist on Saturday who’s going to do EMG but he thinks I don’t have ALS (no clinical weakness). I feel a lot weaker than I normally am but can push a 60 year old docs arms up at the moment. Does anyone have any thoughts?
I am 32 have a beautiful young family that I wish I could concentrate on but this has consumed my whole life.
Thanks for listening.
Andy.