Jasper1983
New member
- Joined
- May 15, 2018
- Messages
- 3
- Reason
- Learn about ALS
- Country
- Oma
- State
- Muscat
- City
- Muscat
Hello Everybody,
I came across this forum in a google search after i was trying to find some information regarding my symptoms.
Basically i have had many issues for past few years such as muscle aches, twitching, fatigue, on and off swallowing issues, pain, numbness, feeling certain parts of my body feel uncoordinated and slow, i have already been to doctors about this including neurologist who are investigations have told me they're not sure whats going on, the results don't show anything serious or worrisome such as EMG, NCV etc that were done in the past few years.
Last month my symptoms have got worse especially regarding my swallowing.
I feel tightness in my throat , my tongue feels clumsly and gets vibration type of feeling sometimes, also some pain around the base of tongue and behind my throat.
feel like my speech gets worse when talking to much like i feel i have to repeat certain words to get the right sound out or cant pronounce things correctly, my tongue feels tired as well and hurts on the sides and at the back.
My jaw feels fatigue, i chew too much sometimes to initiate a swallow and when i swallow i feel some particles of food still feel stuck in my throat, sometimes i get excess saliva, sometimes dry mouth.
Also some numbness in the roof of my mouth and a burning feeling under and on top of my tongue.
My voice gets strained and hoarse easily and also coughing sometimes.
In terms of eating i avoid hard foods now, lost weight, sometimes i feel my swallowing is ok but then suddenly it gets worse, to be honest feels like when i start off a meal its ok but as i go on i start to feel strained or tired and then the swallowing gets more slow and difficult, need to drink liquids to get food down.
I never choke or gag but i feel sometimes food or water might be going down the wrong way and i have to clear my throat.
I even get breathing problems at times but have been checked by a lung specialist and lung test came back good.
Already been doctors about all these issues, in the past month my Neuro told me im ok in terms of MND since already few years and no obvious progression , GI doctor said Acid reflux as usual and same medications, ENT said Throat seemed red and vocal cord irritated due to acid probably.
lastly seems like when i talk to much my hands and wrist start to feel numb and tingling, as well as my foot and parts of my face and head, i mentioned it to the Neuro, he didn't make much of it and said maybe its stress or something. I have done many test including Mri, Mra, emg, blood work, etc etc so im guessing the doctors are not taking me seriously anymore even if i am developing some issues.
I dont want to stay on this forum unless it sounds like something is going on, i really need your advice about what you think it is or i have to worry about a MND etc ?
Awaiting your advice, thanks and bless all of you
I came across this forum in a google search after i was trying to find some information regarding my symptoms.
Basically i have had many issues for past few years such as muscle aches, twitching, fatigue, on and off swallowing issues, pain, numbness, feeling certain parts of my body feel uncoordinated and slow, i have already been to doctors about this including neurologist who are investigations have told me they're not sure whats going on, the results don't show anything serious or worrisome such as EMG, NCV etc that were done in the past few years.
Last month my symptoms have got worse especially regarding my swallowing.
I feel tightness in my throat , my tongue feels clumsly and gets vibration type of feeling sometimes, also some pain around the base of tongue and behind my throat.
feel like my speech gets worse when talking to much like i feel i have to repeat certain words to get the right sound out or cant pronounce things correctly, my tongue feels tired as well and hurts on the sides and at the back.
My jaw feels fatigue, i chew too much sometimes to initiate a swallow and when i swallow i feel some particles of food still feel stuck in my throat, sometimes i get excess saliva, sometimes dry mouth.
Also some numbness in the roof of my mouth and a burning feeling under and on top of my tongue.
My voice gets strained and hoarse easily and also coughing sometimes.
In terms of eating i avoid hard foods now, lost weight, sometimes i feel my swallowing is ok but then suddenly it gets worse, to be honest feels like when i start off a meal its ok but as i go on i start to feel strained or tired and then the swallowing gets more slow and difficult, need to drink liquids to get food down.
I never choke or gag but i feel sometimes food or water might be going down the wrong way and i have to clear my throat.
I even get breathing problems at times but have been checked by a lung specialist and lung test came back good.
Already been doctors about all these issues, in the past month my Neuro told me im ok in terms of MND since already few years and no obvious progression , GI doctor said Acid reflux as usual and same medications, ENT said Throat seemed red and vocal cord irritated due to acid probably.
lastly seems like when i talk to much my hands and wrist start to feel numb and tingling, as well as my foot and parts of my face and head, i mentioned it to the Neuro, he didn't make much of it and said maybe its stress or something. I have done many test including Mri, Mra, emg, blood work, etc etc so im guessing the doctors are not taking me seriously anymore even if i am developing some issues.
I dont want to stay on this forum unless it sounds like something is going on, i really need your advice about what you think it is or i have to worry about a MND etc ?
Awaiting your advice, thanks and bless all of you
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