RonyR
New member
- Joined
- Oct 28, 2021
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- BE
Hi Everyone!
I have a small question.
Since august I experienced some stiff muscles on my back (left-right) just behind my arms.
Later on, end of august my leg felt weak and I started getting a some fasciculations in that calf and knee.. I few weeks later I have fasciculations everywhere.. really everywhere, even in my face, trunk, etc…. 24/7
A few weeks later I notices misses weakness and atrophy in my upper arms (not clinical weakness dixit my neuro)
I also started to have a swallowing issues (did a test (some RX Video) and there they have seen a that there is a musscle with hypertonie of the cricopharynheus musscle causing the problem.. because I had all the other symptoms I was referred back to the neuro.
I went to a neuro and there an EMG of the 4 limbs including the tongue was done. This came back clear.
Also MRI (complete spine and brain) - MRI was also done to look out for hypertensity of the CST - also clean and bloodwork came back fine with very low CK levels.
Finally and after 8 weels after the start my symptoms a spinal tap was done to do a neurofillament test.. Also this came back fine (see attachment)
Still I’m having all the previous symptoms and especially my arm feels weak and heavy, also the swallowing issue is still there and it feels like i feel weakness in my jaw muscles and neck
My question.. Do you Guys think that after all these tests ALS can be ruled out?
Would the spinal tap, neurofillaments already be increased after 6-8 weeks after symptoms or das this to early?
Thanks already! I’m a little worried because all that symptoms are still presen..
I’m worried that i’m still developing ALS, and that the stage I’m in is sl early that it can’t be picked up by tests :-(
I have a small question.
Since august I experienced some stiff muscles on my back (left-right) just behind my arms.
Later on, end of august my leg felt weak and I started getting a some fasciculations in that calf and knee.. I few weeks later I have fasciculations everywhere.. really everywhere, even in my face, trunk, etc…. 24/7
A few weeks later I notices misses weakness and atrophy in my upper arms (not clinical weakness dixit my neuro)
I also started to have a swallowing issues (did a test (some RX Video) and there they have seen a that there is a musscle with hypertonie of the cricopharynheus musscle causing the problem.. because I had all the other symptoms I was referred back to the neuro.
I went to a neuro and there an EMG of the 4 limbs including the tongue was done. This came back clear.
Also MRI (complete spine and brain) - MRI was also done to look out for hypertensity of the CST - also clean and bloodwork came back fine with very low CK levels.
Finally and after 8 weels after the start my symptoms a spinal tap was done to do a neurofillament test.. Also this came back fine (see attachment)
Still I’m having all the previous symptoms and especially my arm feels weak and heavy, also the swallowing issue is still there and it feels like i feel weakness in my jaw muscles and neck
My question.. Do you Guys think that after all these tests ALS can be ruled out?
Would the spinal tap, neurofillaments already be increased after 6-8 weeks after symptoms or das this to early?
Thanks already! I’m a little worried because all that symptoms are still presen..
I’m worried that i’m still developing ALS, and that the stage I’m in is sl early that it can’t be picked up by tests :-(