Jgt1982
New member
- Joined
- Oct 14, 2020
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- MA
- City
- Sharon
Hello,
I have been reading around here and finally decided to post. I did read sticky before posting and thank you for taking the time to read. I’m 37 and this past August I was in ER for heart palpitations and high BP. I had all sorts of blood tests everything came back normal. I did test positive for Lyme antibodies and 1 band but CDC doesn’t consider “positive” without a certain number of bands. I’m also seeing a Lyme Literate Doctor and being treated based on symptoms. Back in August I also developed a ton of cramps in my legs, feet, legs and arms felt weak, and muscle twitches. I have a burning pain on top side of my foot when I step down. Also a pain in my forearm I’ve had for months. I also have internal vibrations Some have gotten better but Muscle twitches are still happening all over but mostly in my legs. I also have internal vibrations in my legs. I notice I have started to drop small things more often ( like cap to milk or my medication) but I’m just wondering if it’s because I’m shaky and noticing it. I have had two separate exams by neuros in Boston. Both said “stone cold” Neuro exam and no concerns for ALS. No decrease in muscle tone or atrophy. They couldn’t figure out why I have twitching and said it can just happen. They didn’t think it was necessary for EMG. I have let my mind get the best of me and I’m scared I have early stages ( Muscle twitching). I also have developed what seems like a cold that has been going on for over a week now. Not Covid- I got checked. My questions are :
Does ALS just start with twitching or internal vibrating ?
Can it be all over - like muscle pains in arms and and legs and feet?
Any words of advice would be greatly appreciated. I can’t get this horrible thought out of my head and it is consuming me.
I have been reading around here and finally decided to post. I did read sticky before posting and thank you for taking the time to read. I’m 37 and this past August I was in ER for heart palpitations and high BP. I had all sorts of blood tests everything came back normal. I did test positive for Lyme antibodies and 1 band but CDC doesn’t consider “positive” without a certain number of bands. I’m also seeing a Lyme Literate Doctor and being treated based on symptoms. Back in August I also developed a ton of cramps in my legs, feet, legs and arms felt weak, and muscle twitches. I have a burning pain on top side of my foot when I step down. Also a pain in my forearm I’ve had for months. I also have internal vibrations Some have gotten better but Muscle twitches are still happening all over but mostly in my legs. I also have internal vibrations in my legs. I notice I have started to drop small things more often ( like cap to milk or my medication) but I’m just wondering if it’s because I’m shaky and noticing it. I have had two separate exams by neuros in Boston. Both said “stone cold” Neuro exam and no concerns for ALS. No decrease in muscle tone or atrophy. They couldn’t figure out why I have twitching and said it can just happen. They didn’t think it was necessary for EMG. I have let my mind get the best of me and I’m scared I have early stages ( Muscle twitching). I also have developed what seems like a cold that has been going on for over a week now. Not Covid- I got checked. My questions are :
Does ALS just start with twitching or internal vibrating ?
Can it be all over - like muscle pains in arms and and legs and feet?
Any words of advice would be greatly appreciated. I can’t get this horrible thought out of my head and it is consuming me.