W3sweat
New member
- Joined
- Mar 18, 2022
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- UT
- City
- Syracuse
Hi everyone.. first I want to say I have read all the posting instructions.. and also I want to say I’m so so sorry to everyone who is going through this or has lost a love one to this.
I am a mom of two.. 32 years old.. a little bit about my history.. had covid in September.. in October I woke up with burning and tingling through out my body.. ( I know this points away from ***) had that happen for a few days.. then again in January I had it happen again.. this time my legs just felt jello and weak.. I just felt off.. let me also throw in I have breast implants and I know those can make you sick.. so anyways I started worrying about ms…
then in February, February 17th to be exact I started have twitching all over my body.. I was an idiot and googled.. and you know what I came across.. I started reading that, watching ppls stories on YouTube, and reading all these forums.. learned way too much about it.
I’ve also lately when I’m sleeping and start to have really bad anxiety I like have a weird swallowing thing that keeps me up. I don’t know how to explain it.. I went to a neurologist marCh 25th and he checked my reflexes.. I told him I worried about bulbar too cuz when I stick my tongue out it does twitch here and there.. all he did was check my tongue for like 3 seconds.. my reflexes were great.. he told me for my peace of mind cuz he could tell how worried I was to come back for a emg cuz he can’t ever say 100 percent it’s not als without one.. and he could tell I wanted one and needed one for peace of mind.
Came back March 28th he just tested my right leg and left arm.. he said he saw nothing.. ( at my two appointments I didn’t twitch once of course) it’s more at night or when at rest.. so he told me to not worry about als that that is done with.. i asked if he thought I could have bfs.. and he said I don’t even think it’s that. Prob anxiety.. yes my anxiety is through the roof I’ve never been like this..
I have jolting.. my lips will twitch.. or like jerk I don’t know how to explain.. sometimes will get some in my neck..my twitching has subsided a little bit.. but now is more upper.. but will sometimes have a couple twitches in feet or one in leg.. but are so settle that it scares me cuz they use to be intense.
I also forgot to say my leg and arms will sometimes fall asleep at night.. then yesterday I was yawning a lot a lot and that scared me cuz of what I’ve read.. I’ve just read way too much.. sorry this is so long. And thanks for taking time to read it..
so my question is.. should I go get reevaluated? I’m nervous maybe I could have upper? I don’t have slurring or anyhing. I stutter sometimes.. I know I’m just so worried.. this legit is all I think about when I wake up in morning until I go to bed. It’s taking over my life. I sit and watch my tongue.. it’s just awful.. i am present in my kids life but not cuz I’m so worried.. also I’m always cold.. i think my circulation is horrible but don’t know if that has anything to do with it…Just am worried cuz I use to have twitching all over now it’s kinda just settled into my upper but will occasionally have some bottom twitching. And the swallowing when I trying to go back to sleep that keeps me up.. but it’s not like choking I don’t know how to explain this.. but I notice this happens when my anxiety is high.. cuz I’m able to go to bed at night and it doesn’t happen..
I also forgot to mention I do get some cramping it my feet and calves here and there.. anyways I’m so sorry this is so long and so back and forth. And the yawning thing really scared me how much I did it yesterday. But I don’t know if it’s cuz I’m having anxiety or can’t breathe.. or what’s going on. Again I’m sorry for this chaotic thread.. Happy Easter everyone! You are loved
I also forgot to mention I have cramping in calves and feet sometimes.. and I have aches and pains in arms, joints etc.. I know this points away from it.. but I wanted to give all detail.. again my heart goes out to you guys who are going through this
I am a mom of two.. 32 years old.. a little bit about my history.. had covid in September.. in October I woke up with burning and tingling through out my body.. ( I know this points away from ***) had that happen for a few days.. then again in January I had it happen again.. this time my legs just felt jello and weak.. I just felt off.. let me also throw in I have breast implants and I know those can make you sick.. so anyways I started worrying about ms…
then in February, February 17th to be exact I started have twitching all over my body.. I was an idiot and googled.. and you know what I came across.. I started reading that, watching ppls stories on YouTube, and reading all these forums.. learned way too much about it.
I’ve also lately when I’m sleeping and start to have really bad anxiety I like have a weird swallowing thing that keeps me up. I don’t know how to explain it.. I went to a neurologist marCh 25th and he checked my reflexes.. I told him I worried about bulbar too cuz when I stick my tongue out it does twitch here and there.. all he did was check my tongue for like 3 seconds.. my reflexes were great.. he told me for my peace of mind cuz he could tell how worried I was to come back for a emg cuz he can’t ever say 100 percent it’s not als without one.. and he could tell I wanted one and needed one for peace of mind.
Came back March 28th he just tested my right leg and left arm.. he said he saw nothing.. ( at my two appointments I didn’t twitch once of course) it’s more at night or when at rest.. so he told me to not worry about als that that is done with.. i asked if he thought I could have bfs.. and he said I don’t even think it’s that. Prob anxiety.. yes my anxiety is through the roof I’ve never been like this..
I have jolting.. my lips will twitch.. or like jerk I don’t know how to explain.. sometimes will get some in my neck..my twitching has subsided a little bit.. but now is more upper.. but will sometimes have a couple twitches in feet or one in leg.. but are so settle that it scares me cuz they use to be intense.
I also forgot to say my leg and arms will sometimes fall asleep at night.. then yesterday I was yawning a lot a lot and that scared me cuz of what I’ve read.. I’ve just read way too much.. sorry this is so long. And thanks for taking time to read it..
so my question is.. should I go get reevaluated? I’m nervous maybe I could have upper? I don’t have slurring or anyhing. I stutter sometimes.. I know I’m just so worried.. this legit is all I think about when I wake up in morning until I go to bed. It’s taking over my life. I sit and watch my tongue.. it’s just awful.. i am present in my kids life but not cuz I’m so worried.. also I’m always cold.. i think my circulation is horrible but don’t know if that has anything to do with it…Just am worried cuz I use to have twitching all over now it’s kinda just settled into my upper but will occasionally have some bottom twitching. And the swallowing when I trying to go back to sleep that keeps me up.. but it’s not like choking I don’t know how to explain this.. but I notice this happens when my anxiety is high.. cuz I’m able to go to bed at night and it doesn’t happen..
I also forgot to mention I do get some cramping it my feet and calves here and there.. anyways I’m so sorry this is so long and so back and forth. And the yawning thing really scared me how much I did it yesterday. But I don’t know if it’s cuz I’m having anxiety or can’t breathe.. or what’s going on. Again I’m sorry for this chaotic thread.. Happy Easter everyone! You are loved
I also forgot to mention I have cramping in calves and feet sometimes.. and I have aches and pains in arms, joints etc.. I know this points away from it.. but I wanted to give all detail.. again my heart goes out to you guys who are going through this
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