Mendel
New member
- Joined
- Jun 11, 2009
- Messages
- 2
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- UK
- State
- NY
- City
- essex
Hi,
Thanks in advance for any comments or help.
Me: 41 year old male for info. otherwise normally in good health.
Situation: 3 years ago had all over twitching, burning etc.. went to Dr. they were not worried (I was obv.) eventually it went away.
2 months ago: Had funny breathing where my breathing kind of stuttered. It was harder to breath and sometimes it happened in like 3 steps like a cog espeically when lying down or if I pushed into my stomach. Had pain in stomach as well. This feeling comes and goes but I often found myself breathing through my mouth not nose which I never used to. Feels like my stomach twitches a lot (very low down). Has all over twitches then fasciation's in calves. Went to doctors they were not worried enough to send me to a neurologist (UK have to be referred). Toe feels weak in right foot but all test are fine.
1 month ago: Same as before so paid for EMG results attached.
Now: Face is now twitching and still some fascillations in calves, stomach feels odd twitch or weird. No tongue twitches. Breathing some days feel hard. Lots of spit in mouth. Face twitches and aches and I am clenching teeth a lot. No choking on food and speech is sort of OK I feel it is hoarse some days or I am slurring but wife says OK. Have bitten my tongue a but lately. Jaw aches a clicks a lot.
My doctors will not refer me to a neurologist and I am concerned above my EMG.
I just know that I feel very odd with my breathing and sometimes I nearly cry at sad things on TV a little more easily than I use to. I don't actually cry but get sudden urge then it instantly passes.
Obviously I am concerned about Bulbar onset ALS or any ALS tbh but my Doctor's do not want to listen, as they just say health anxiety over and over, they are known for being extremely late to refer patients to anything.
As I paid for just an EMG there wasn't much of an interpretation he just said all normal (it was late and last appointment). I got it today (attached) and it shows occasional polphasics which I am worried about and do not understand.
Any feedback is very gratefully received.
Thanks
Mike
Thanks in advance for any comments or help.
Me: 41 year old male for info. otherwise normally in good health.
Situation: 3 years ago had all over twitching, burning etc.. went to Dr. they were not worried (I was obv.) eventually it went away.
2 months ago: Had funny breathing where my breathing kind of stuttered. It was harder to breath and sometimes it happened in like 3 steps like a cog espeically when lying down or if I pushed into my stomach. Had pain in stomach as well. This feeling comes and goes but I often found myself breathing through my mouth not nose which I never used to. Feels like my stomach twitches a lot (very low down). Has all over twitches then fasciation's in calves. Went to doctors they were not worried enough to send me to a neurologist (UK have to be referred). Toe feels weak in right foot but all test are fine.
1 month ago: Same as before so paid for EMG results attached.
Now: Face is now twitching and still some fascillations in calves, stomach feels odd twitch or weird. No tongue twitches. Breathing some days feel hard. Lots of spit in mouth. Face twitches and aches and I am clenching teeth a lot. No choking on food and speech is sort of OK I feel it is hoarse some days or I am slurring but wife says OK. Have bitten my tongue a but lately. Jaw aches a clicks a lot.
My doctors will not refer me to a neurologist and I am concerned above my EMG.
I just know that I feel very odd with my breathing and sometimes I nearly cry at sad things on TV a little more easily than I use to. I don't actually cry but get sudden urge then it instantly passes.
Obviously I am concerned about Bulbar onset ALS or any ALS tbh but my Doctor's do not want to listen, as they just say health anxiety over and over, they are known for being extremely late to refer patients to anything.
As I paid for just an EMG there wasn't much of an interpretation he just said all normal (it was late and last appointment). I got it today (attached) and it shows occasional polphasics which I am worried about and do not understand.
Any feedback is very gratefully received.
Thanks
Mike