work

Status
Not open for further replies.

Nene

Member
Joined
Nov 12, 2007
Messages
16
Reason
PALS
Diagnosis
10/2007
Country
AUS
State
queensland
City
cairns
hi all just wondering what type of work you did i was a hairdresser for 30 years. r any of u still working
 

johnals

New member
Joined
May 8, 2007
Messages
7
Reason
PALS
Country
US
State
mass
City
new bedford
before i started w/symptoms or actualy while in denial of symptoms i was a mechanic and retail managment, tried to keep working as long as i could, still work a few hours a week although only as a cashier,mgr is pretty understanding and i dont think many others would give me the opportunity he has. oh by the way its been 4 years since i first noticed leg fatigue and foot drop, just starting to get upper body symptoms but i am confident i will beat this!:-D
 

Icanmanz

Senior member
Joined
Jul 14, 2007
Messages
947
Reason
PALS
Country
Uni
State
Texas
City
Tomball
johnals, you are in my prayers! Love your attitude, and may God bless you for that.

Irma
 

liz

Senior member
Joined
Nov 9, 2006
Messages
642
Reason
PALS
Diagnosis
11/2006
Country
US
State
NY
City
Albany
I was diagnosed last year - still working for a public mental health agency - have a very supportive employer and the work is not strenuous.
 

geehdee

Member
Joined
Jul 12, 2007
Messages
12
Reason
PALS
Diagnosis
10/2007
Country
US
State
AZ
City
Tempe
still working

i am a research technician for the Agricultural Service. Still 5 years away from normal retirement but have been working sick for two years. My job depends on using my hands which I'm losing. My boss pledges to keep me on until I absolutely have to go.
I love my job and the people I work with are wonderful so I think working is actually keeping me on the bright side.

Gail
 

cheryilyn

Active member
Joined
May 22, 2007
Messages
62
Reason
PALS
Diagnosis
Sept. 06
Country
US
State
Oregon
City
Salem
i spent 15 years working at a silicon wafer manufacturer. lots of chemicals.
the plant closed down 4 years ago and i have not worked since
 

KateO

Active member
Joined
Jul 11, 2007
Messages
53
Reason
PALS
Country
US
State
Montana
City
Helena
I am an independent consultant. I work from my home and also travel. I've had symptoms for just over a year now and was diagnosed last March.

Travelling is difficult, but I love it so much I will continue to do it as long as I am able. I use a walker and do tire easily. I just figure out my priority each morning and plan time for rest in the middle of each day. Even when I travel I plan a 1.5 hour rest in middle of day.

Some people say, "why continue to work when you know you're going to die?". I love my work so I want to continue !
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,543
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
That's like asking why travel when you know you are going to die. Or why spend so much time with your family, playing poker, reading, or sitting in the sun when you know you are going to die. Why assume that because some people don't like thier job, nobody does?
 

ltr

Senior member
Joined
Feb 11, 2007
Messages
690
Country
US
State
NY
City
Elmira
this is a very interesting thread, thanks everyone for sharing! I worked in the hospital for 15 years and in a fitness club on the side. Then I went back to school for my newest degree, mass communications with emphasis in journalism, and in the third year I became ill, but I did finish and graduate. I have chronic polymyositis so it is not expected to go away, but maybe get better. I am hoping the time will come when I can go out and use my new degree. I have been trying some freelance from home. I hope that works out!
 

Icanmanz

Senior member
Joined
Jul 14, 2007
Messages
947
Reason
PALS
Country
Uni
State
Texas
City
Tomball
ltr, what an amazing person you are! May God bless you for being so courageous, and such a fighter! Hugs and lots of prayers your way..............

Irma
 

judylyne

Active member
Joined
Nov 18, 2007
Messages
66
Reason
Loved one DX
Diagnosis
10/2007
Country
US
State
michigan
City
rothbury
My husband made Lifesavers candy. Luckily when they moved to Canada they gave him an excellent prescription plan because his meds cost 2000 dollars a month
 

AngelManFL

Active member
Joined
Sep 30, 2007
Messages
98
Diagnosis
11/2007
Country
US
State
FL
City
Tampa Bay Area
Workaholic and lovin it!

I love my job - and I mean every aspect of it! It is a family business, so maybe that makes a difference and I'm the boss and my brother is the owner.. I pray to God I will be able to continue working as long as possible. But the onset of all this was only last August(2006) and I am already in an electric wheelchair and have a lost a lot of motor functions in my hands, but I will setup an office in my bedroom and work from there if I have to! I am their leader, their 'go to' person - from my crews out in the field, my project Manager and everyone in our office. My brother is the "Field Man" of 27 years(semi-retired) and he is a genius out there, but he doesn't even know how to turn on a computer! I am terrified of not being there due to ALS and how fast it has progressed - I just keep praying it will slow down... Oh - we run a foundation drilling corporation that does deep caisson foundations for cell towers, sub-stations, bridges and large tall buildings for the Southeastern US (FL, GA, AL, MS, TN, SC & NC). Our Dad started out 50 years ago and now it is just my brother and I. It is fascinating and I don't know how I will survive if and when I ever have to stop and put it in someone elses hands to run... It takes 3-4 hours to get up and get there some days(today), but it is what keeps me going - I have already hired some people to try and teach and relinquish some responsibilities to, but it's not easy I can tell you that! It is like trying to give away your own children! Well maybe that's a little stretching it, but still it is quite difficult after you have raised it and nurtured it and watched it grow.... Sorry about the rambling again.... :oops: until next time my precious friends..
 

patricia1

Very helpful member
Joined
Sep 18, 2006
Messages
1,149
Reason
PALS
Diagnosis
7/1999
Country
US
State
newjersey
City
lopatcong NJ
I worked in the medical field for thirty years retired 2 years ago was doing 12 hour days too much for me I did it for 6 years with als
 
Status
Not open for further replies.
Top