Wooly
Member
- Joined
- Aug 23, 2018
- Messages
- 19
- Reason
- Learn about ALS
- Diagnosis
- 12/2017
- Country
- UK
- State
- UK
- City
- Emerald
Hi everyone,
Just to update and say a big thank you for all your kindness and support.
Sadly Nigel died on 6/5/20 at home.
We had put him in our bed and I was holding him. Our kids were there too.We even found a baby duckling under the car and my son put It on his pillow. He would have loved that.(It went back to the pond and found its mum).
It was as lovely as it could be but I am heartbroken.
Our son is joining Genfi to continue the search for a cure.
I will never know how much was Ftd/als and how much was his brain Mets from melanoma but he was keen to help in the search for a cure for als and ftd.
I truly hope it's not too long.
Thank you again.
Just to update and say a big thank you for all your kindness and support.
Sadly Nigel died on 6/5/20 at home.
We had put him in our bed and I was holding him. Our kids were there too.We even found a baby duckling under the car and my son put It on his pillow. He would have loved that.(It went back to the pond and found its mum).
It was as lovely as it could be but I am heartbroken.
Our son is joining Genfi to continue the search for a cure.
I will never know how much was Ftd/als and how much was his brain Mets from melanoma but he was keen to help in the search for a cure for als and ftd.
I truly hope it's not too long.
Thank you again.