Woke Up - Air Hunger

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Pete, I am so sorry for your struggles and the pain ALS has inflicted on you & your loved ones. I do understand .......... HUG!
 
last weel slight crackling upper left diminished lung and lower bp 120/88. this week no left crackle but right crackle over bareley audible lung, lower bp 108/80 normally i run 140+ over 80 or so.
 
Sending huge hugs Pete and prayers for peace and comfort.

hugs
 
Hi Pete

My BP is dropping as well. Last read was 86/63.
I am now severely nauseous and every other day I am unable to eat. Pain levels have increased and I have had to resort to narcotics during the day. The end is nearing. When I close my eyes, besides the colors from my synesthesia, I am seeing a happy nun. I may be hallucinating from the drugs but she keeps popping up. I think she is my guardian angel.
 
i dont know where the end is. i sleep 16+ hours a day, the nurses say they can barely hear any air movement. my bp veries my on is about 93-96. i feel always exhauasted. dont care if i eat. dry heave and nausea often. as med time gets near i get air hunger and hot. taking shower or using toilet wipes me out. is this near the end or jus another step. i just dont know i guess i just patiently wait.
 
Pete, I so admire your courage and your strength. I am also impressed in the strength of your faith. I hope you can wrap that faith around you tightly and, when it is time, it holds you close until you are on the other side. Wishing you peace.
 
Continuing to pray for you Pete. May the Lord grant you peace and strength and the same for Cary and your children.

Hugs,
 
Hi.Pete

Praying for you. I am down to days, I haven't been able to tolerate any food since last Thursday. Breathing is very weak. Very nauseous and in pain. Ready to run to my heavenly father . This is likely my last post. Love to you and pray for a peaceful transition for you. You have been an inspiration.
 
Karen sending prayers for peace and comfort to you.
 
karen thank you four your encouragment, you have been a rock to many of us. if this is the end i am hopeful that it is quiet, fast, and comfortable, that all the physical and mental pain will cease quickly.
 
Pete,
I've been thinking of you often. Wanted to let you know you're in my thoughts and prayers and I'm always wishing you peace and comfort.
 
thank you Star, thank all of you. this is a tough journey to be on but i am regularly encouraged by how many people selflessly give of thier time and energy to help each other here.. even when typing becomes mumbled and hard people keep shedding tears together to try and make someone elses life a little better. you amaze me and honnor me with your thoughts.
 
Pete, Karen

Here’s to a clean take off and a safe landing for us all

Love ya
Chally
 
Hugs to you, Pete. Sending prayers for comfort your way.
 
Karen and Pete,

Thank you both for sharing you journey. Wishing you comfort and peace.
 
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